Technology to Empower Changes in Health (TECH) Network Participant Technologies Center

摘要/项目摘要 我国数字基础设施的显著进步与爆炸性增长相结合 在普及的无线连接创造了前所未有的潜力，以改善我们的 健康和医疗保健的提供。除了普遍可用之外，智能手机和 支持它们的移动的网络为健康相关数据提供了无与伦比的平台 采购和通信。精准医疗计划（Precision Medicine Initiative Cohort Program） （PMI-CP）是可能的，在很大程度上，由于这种数字基础设施的可用性。然而，在这方面， 将百万人提供的大部分脱节的信息转换成 纵向队列转化为有意义的，改变生活的医学知识需要发展， 一个创新的、以会员为中心的、吸引人的、安全的数字网络，是当今最先进的， 在接下来的几年和几十年里， 为了确保PMI-CP实现其目标，改变现有的医疗文化， 通过授权患者，研究人员和提供者共同努力， 同行需要许多具有不同专业知识的人的协作支持， 注重以参与者为中心。参与者技术中心（PTC）是一个关键的 这是实现这一目标的一个重要组成部分，并确保我们能够成功地实现 PMI指导委员会的需求，最重要的是，PMI参与者，我们有 形成了一个网络或世界级的合作伙伴，共同拥有的资源，经验和 专业解决已知和未知挑战所需的能力， 像PMI-CP奋进变革性和远见。赋予权力的技术 健康变化（TECH）网络由Scripps转化科学研究所和Sage领导 Bionetworks，包括PatientsLikeMe，高通，沃尔格林，Verizon，洛克希德马丁， 和蓝十字蓝盾协会，汇集了前所未有的经验， 了解参与者参与、数字安全和个人技术。 虽然PTC旨在优化PMI-CP中的技术利用率，但我们的 将坚定不移地关注PMI参与者以及如何最大限度地发挥参与的益处 对他们个人来说。我们将通过建立基于个性化的基础来实现这一目标。 参与战略、对安全和隐私的坚定承诺，并确保 满足所有当前和未来数据所需的最新技术的可用性， 信息共享需求。 .

Abstract/Project Summary Remarkable advancements in our nation's digital infrastructure combined with explosive growth in pervasive wireless connectivity have created the unprecedented potential to improve both our health and the delivery of healthcare. Beyond their universal availability, smartphones and the mobile networks that support them offer an unparalleled platform for health-related data acquisition and communications. The visionary Precision Medicine Initiative Cohort Program (PMI-CP) is possible, in large part, due to the availability of this digital infrastructure. However, to convert the enormous pool of mostly disjointed information available through a million-person longitudinal cohort into meaningful, life-changing medical knowledge requires development of an innovative, member-centric, engaging, and secure digital network that is state-of-art today, and by design, sustainably so over ensuing years and decades. In order to assure that the PMI-CP achieves its goal to transform the existing culture of medical practice and research by empowering patients, researchers and providers to work together as peers requires the collaborative support of many people with diverse expertise but a singular focus on participant-centeredness. The Participant Technologies Center (PTC) is a critical component to making that happen, and to ensure that we are able to successfully meet the needs of the PMI Steering Committee, and most importantly, the PMI participants, we have formed a network or world-class partners that together have the resources, experience and capabilities necessary to expertly address the known and not-yet known challenges of an endeavor as transformational and far-sighted as the PMI-CP. The Technology to Empower Change in Health (TECH) network is led by Scripps Translational Science Institute and Sage Bionetworks, and includes PatientsLikeMe, Qualcomm, Walgreens, Verizon, Lockheed-Martin, and the Blue Cross Blue Shield Association, bringing together unprecedented experience and knowledge around participant engagement, digital security and personal technologies. Although the PTC is designed to optimize the utilization of technologies in the PMI-CP, our unwavering focus will be on the PMI participant and how to maximize the benefit of participation for them personally. We will accomplish this by laying a foundation built upon personalized engagement strategies, an resolute commitment to security and privacy, and assuring the availability of the state-of-the-art technology needed to meet all current and future data and information sharing needs. .