CAMP FHIR: Lightweight, Open-Source FHIR Conversion Software to Support EHR Data Harmonization and Research
CAMP FHIR:支持 EHR 数据协调和研究的轻量级开源 FHIR 转换软件
基本信息
- 批准号:10402112
- 负责人:
- 金额:$ 20.35万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2021
- 资助国家:美国
- 起止时间:2021-09-01 至 2022-02-28
- 项目状态:已结题
- 来源:
- 关键词:Academic Medical CentersAddressAdoptedArchitectureAwardBackClinicalClinical DataClinical InformaticsClinical ResearchClinical SciencesCollaborationsCommunitiesCommunity HospitalsComputer softwareConsumptionCustomDataData AnalysesData ScienceData SourcesData StoreDatabasesDevelopmentDisciplineDocumentationElectronic Health RecordEngineeringEnsureEnvironmentExtensible Markup LanguageFast Healthcare Interoperability ResourcesFundingFutureGoalsHealth PersonnelHealth StatusHealthcareHumanIndividualIndustry StandardInformaticsInfrastructureInstitutesInstitutionIntentionInterdisciplinary StudyInvestigationJavaLeadLeftLinuxLocationLongevityMethodologyMethodsMissionModelingNamesNorth CarolinaOccupationsOperative Surgical ProceduresOpiate AddictionOutputParentsPatient CarePatientsPharmaceutical PreparationsPhasePopulationPopulation ResearchPositioning AttributeProblem SolvingProceduresProcessProductivityPublic HealthReadinessReadingRecordsResearchResearch AssistantResearch InstituteResearch PersonnelResearch TrainingResourcesRoleScienceSecureServicesSiteSoftware EngineeringSourceSource CodeStructureTerminologyTestingTextTimeTrainingTranslatingTranslational ResearchTranslationsUnited States National Institutes of HealthUniversitiesUpdateValidationVendorVisualVocabularyWorkWorkforce DevelopmentWritinganalytical toolbenefit sharingclinical research sitecohortcommunity interventioncommunity organizationscomputer sciencedata exchangedata formatdata harmonizationdata managementdata modelingdata resourcedata sharingdata standardsdata toolsdata translatorexperiencegraduate studentgraphical user interfacehealth dataimprovedinformatics infrastructureinformatics toolinnovationinteroperabilitylight weightnovelopen sourcepeerpreventprogramsresponsesoftware developmenttooluptakeusabilitywiki
项目摘要
Project Summary
Since our inception in 2008, the UNC CTSA affiliate, the North Carolina Translational and Clinical Sciences
Institute (TraCS) has transformed clinical and translational science at UNC through interdisciplinary research,
training, collaboration with partners and stakeholders, and strong engagement across the CTSA consortium.
We have built a dynamic regional network of universities, research institutes, health care providers, and >130
community organizations across our state.
In our current funding cycle, we are translating the best science from UNC and across the CTSA
consortium into creative, effective, and accessible clinical and community interventions, addressing the public
health problems of our state and advancing national CTSA goals by completing our Overall Aims. Aim 1
Workforce Development: Develop and support a skilled and diverse clinical and translational research
workforce to advance translational innovations and address healthcare priorities. Aim 2 Collaboration and
Engagement: Engage diverse stakeholders as active partners in translational research, and promote
innovative approaches to team science. Aim 3 Integration: Integrate translational research for disciplines and
populations across the research continuum and throughout the lifespan; Aim 4 Methods/Processes: Develop
and disseminate innovative methods and approaches to address scientific and operational barriers to
translating scientific findings. Aim 5 Informatics: Incorporate cutting-edge informatics tools and methodologies
in every aspect of translational research.
The TraCS Informatics and Data Science (IDSci) component provides services and develops new tools
that increase research productivity and reduce the effort required by individual researchers and teams to
conduct effective clinical and translational research. We have built sustainable, cross-institutional informatics
infrastructure and data governance processes that keep data secure while removing barriers to getting
research done. In our current funding cycles, we are building on our experience in developing local resources
and tools to support leading national informatics initiatives, training our translational workforce on the use of
informatics tools including those from other CTSA hubs, providing secure and compliant data management
services, disseminating open source software locally and nationally, and engaging communities of
stakeholders in translational research via the sharing of data and tools.
TraCS IDSci developers conceptualized CAMP FHIR in 2018 in response to a need to work with
electronic health record (EHR) data in “bulk” Fast Healthcare Interoperability Resources (FHIR) format, despite
HL7 not having released a finalized bulk FHIR specification. (Bulk FHIR enables EHR data extraction for large
cohorts of patients rather than one patient at a time, which is essential for population-based research.) CAMP
FHIR fills this gap, enabling users to convert large amounts of data stored in common data models (CDMs;
i2b2/ACT and PCORnet) directly to FHIR. After inquiring with informatics teams at peer institutions, we realized
that demands to use FHIR data for research (including NIH’s request to do so, as described in 2019’s
NOT-OD-19-122) were ahead of “official” FHIR specifications and capabilities from EHR vendors and HL7
itself. This encouraged us to continue development of CAMP FHIR to support more resources and fields than
originally envisioned.
This current proposal is in response to NOT-OD-21-091 and builds on IDSci’s aim to develop
leading-edge informatics tools and methods and make these available to the CTSA consortium. Through this
supplement, we will update and harden CAMP FHIR (i.e., make CAMP FHIR more robust) using software
engineering best practices, as well as ensure deployability on the cloud. Our ultimate goal is to create and
support a CTSA community of CAMP FHIR users who can use the tool both independently and collaboratively,
and continue to engage in open-source development over time. The work to update CAMP FHIR in the
proposed manner will greatly increase the number of users and impact of the software, and is within the
mission of the CTSA and the scope of our parent award. However, the activities to prepare CAMP FHIR for
broad dissemination across the CTSA consortium require resources beyond what is provided in our current
CTSA award. We believe the entirety of the CTSA consortium could benefit from having the capability to
convert CDM data to FHIR (and vice versa), facilitating the efficient investigation of novel research questions
and hastening discoveries that improve human health and patient care.
项目总结
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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John Bernard Buse其他文献
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{{ truncateString('John Bernard Buse', 18)}}的其他基金
North Carolina Translational and Clinical Sciences Institute (NC TraCS)
北卡罗来纳州转化与临床科学研究所 (NC TraCS)
- 批准号:
10621596 - 财政年份:2023
- 资助金额:
$ 20.35万 - 项目类别:
CTSA Diversity Supplement - Vielot - Effectiveness of Recombinant Herpes Zoster Vaccine in Older U.S. Adults
CTSA 多样性补充 - Vielot - 重组带状疱疹疫苗对美国老年人的有效性
- 批准号:
10294412 - 财政年份:2021
- 资助金额:
$ 20.35万 - 项目类别:
ICEES+ COVID-19 Open Infrastructure to Democratize and Accelerate Cross-Institutional Clinical Data Sharing and Research
ICEES COVID-19 开放基础设施民主化并加速跨机构临床数据共享和研究
- 批准号:
10158906 - 财政年份:2020
- 资助金额:
$ 20.35万 - 项目类别:
North Carolina Translational and Clinical Science Institute (NC TraCS)
北卡罗来纳州转化与临床科学研究所 (NC TraCS)
- 批准号:
9986930 - 财政年份:2019
- 资助金额:
$ 20.35万 - 项目类别:
CTSA Administrative Supplement for Quality Assurance/Quality Control Position
CTSA 质量保证/质量控制职位行政补充
- 批准号:
10158836 - 财政年份:2018
- 资助金额:
$ 20.35万 - 项目类别:
North Carolina Translational and Clinical Science Institute (NC TraCS)
北卡罗来纳州转化与临床科学研究所 (NC TraCS)
- 批准号:
10407956 - 财政年份:2018
- 资助金额:
$ 20.35万 - 项目类别:
North Carolina Translational and Clinical Science Institute (NC TraCS)
北卡罗来纳州转化与临床科学研究所 (NC TraCS)
- 批准号:
9884611 - 财政年份:2018
- 资助金额:
$ 20.35万 - 项目类别:
North Carolina Translational and Clinical Science Institute (NC TraCS)
北卡罗来纳州转化与临床科学研究所 (NC TraCS)
- 批准号:
10585423 - 财政年份:2018
- 资助金额:
$ 20.35万 - 项目类别:
North Carolina Translational and Clinical Science Institute (NC TraCS)
北卡罗来纳州转化与临床科学研究所 (NC TraCS)
- 批准号:
10116521 - 财政年份:2018
- 资助金额:
$ 20.35万 - 项目类别:
North Carolina Translational & Clinical Sciences Institute (NC TraCS)
北卡罗来纳州翻译
- 批准号:
8743352 - 财政年份:2013
- 资助金额:
$ 20.35万 - 项目类别:
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