Core E: Outreach and Recruitment Core

核心 E：外展和招聘核心

• 批准号: 10468310
• 负责人: Andrew Budson
• 金额: $ 29.4万
• 依托单位: BOSTON UNIVERSITY MEDICAL CAMPUS
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10468310
• 关键词: Address; Affect; Alzheimer' s Disease; Awareness; Biological Markers; Black race; Books; Boston; Brain; Brain Concussion; Cities; Clinic; Clinical; Clinical Data; Clinical Research; Clinical Trials; Cognitive; Collaborations; Communities; Community Actions; Country; Data; Diagnosis; Disclosure; Disease; Educational workshop; Enrollment; Ensure; Event; Family; Foundations; Funding; Genetic; Genetic Markers; Goals; Health Professional; Healthcare Systems; Individual; Knowledge; Lead; Massachusetts; Medical Genetics; Memory; Methods; Military Personnel; New Hampshire; Newsletter; Pamphlets; Paper; Participant; Patient Recruitments; Persons; Pharmacology; Population Study; Positron-Emission Tomography; Precision Health; Procedures; Professional Education; Race; Reduce health disparities; Registries; Research; Research Project Grants; Sampling; Series; Spinal Puncture; Standardization; Students; Translational Research; Underrepresented Populations; United States National Institutes of Health; Universities; Veterans; Work; aging brain; base; catalyst; chronic traumatic encephalopathy; clinical center; cognitive change; cohort; community center; data management; education research; effectiveness evaluation; genetic testing; head impact; health disparity; high risk; innovation; insight; lectures; neuropathology; novel; outreach; participant retention; precision medicine; prevent; programs; recruit; social media; statistics; symposium; web site

The Outreach, Recruitment, and Engagement (ORE) Core of Boston University Alzheimer's Disease Research Center (ADRC) will pursue three main aims: (1) to outreach to, engage with, and inform Boston communities regarding Alzheimer's disease (AD) and AD related disorders (ADRD) through traditional and novel initiatives, (2) to facilitate the recruitment and retention of participants in the ADRC Clinical Core (CC) cohort, research registry, and affiliated research projects, and (3) to collaborate with the Research Education Component (REC) in developing innovative print materials, courses, workshops, and programs for healthcare professionals, REC and other trainees, and the public that will lead to new participant referrals to our center, enhance expert and lay knowledge of AD/ADRD, and can be used in other ADRCs. By providing participants who can participate in the CC cohort and ADRC affiliated studies, the ORE core facilitates National Alzheimer's Project Act (NAPA) milestones related to Translational & Clinical Research; and Biomarkers & Diagnosis. The ORE core also ensures adequate numbers of Black participants enroll in our CC cohort and affiliated local and national studies, addressing NAPA milestone, Population Studies, Precision Medicine & Health Disparities. The ORE Core team will continue to collaborate with our Data Management and Statistics (DMS) core to characterize and track participants, and help the Clinical, Genetic, Biomarker, and Neuropathology cores by creating materials to explain research procedures including lumbar punctures, PET scans, genetic tests, and brain donation. To achieve NAPA goals, Expand Supports for People with AD and Their Families, and Enhance Public Awareness and Engagement, the ORE core partners with local organizations including our BU ADRC Community Action Council, the Massachusetts ADRC, the Alzheimer's Association of MA/NH, the Boston VA, the Bedford VA, the Concussion Legacy Foundation, the City of Boston, and other groups. To enroll participants, we will use innovative programs: recruitment coordinators as Navigators; aiding recruitment while educating with Student Ambassadors; educating, retaining, and guiding participants into research with our AgeWISE program; educating and recruiting participants with our 7 Steps Talks; and our books. Additional outreach, recruitment, retention, and engagement strategies include our key partnerships, website, social media, brochures, newsletters, talks, memory screenings, clinic recruitment, seminars, participation at community events, “Thank You” retention brunch, and disclosure of genetic and biomarker information. Referrals to our center are generated by our ADRC Lecture Series and other professional education talks, CTE Conference, as well as relevant research and review papers. We will work with the DMS core to evaluate the effectiveness of our recruitment efforts and alter our efforts accordingly.

波士顿大学阿尔茨海默病的外展、招募和参与(ORE)核心 研究中心(ADRC)将追求三个主要目标：(1)接触、接触和提供信息 波士顿社区关于阿尔茨海默病(AD)和AD相关疾病(ADRD)的信息 传统的和新颖的举措，(2)便利招募和留住非盟的参与者 临床核心(CC)队列、研究注册和附属研究项目，以及(3)协作 研究教育部分(REC)在开发创新的印刷材料、课程、 为医疗保健专业人员、REC和其他受训人员以及公众举办的研讨会和计划将 向我们的中心推荐新的参与者，增强AD/ADRD的专家和非专业知识，以及 可用于其他ADRC。通过提供可以参与CC队列和ADRC的参与者 附属研究，ORE核心促进国家阿尔茨海默氏症项目法案(NPA)相关里程碑 转译和临床研究；以及生物标志物和诊断。矿石芯也确保了 足够数量的黑人参与者参加我们的CC队列及其附属的地方和国家研究， 解决国家适应行动方案的里程碑、人口研究、精准医学和健康差距。矿石 核心团队将继续与我们的数据管理和统计(DMS)核心合作 描述和跟踪参与者，并帮助临床、遗传、生物标志物和神经病理学 通过创建材料来解释研究程序，包括腰椎穿刺术、PET扫描、 基因测试和脑捐赠。为了实现NAPA目标，扩大对AD患者和 他们的家庭，并提高公众意识和参与，ORE的核心合作伙伴与当地 包括我们的BU ADRC社区行动委员会、马萨诸塞州ADRC、 阿尔茨海默氏症协会、波士顿退伍军人管理局、贝德福德退伍军人管理局、脑震荡遗产 基金会、波士顿市政府和其他组织。为了招募参与者，我们将使用创新 项目：招聘协调员担任导航员；在教育学生的同时协助招聘 大使；教育、留住和引导参与者参与我们的老龄计划的研究； 通过我们的7步演讲和我们的书籍来教育和招募参与者。更多的外展， 招聘、留住和参与战略包括我们的主要合作伙伴关系、网站、社交媒体、 小册子、通讯、讲座、记忆放映、诊所招聘、研讨会、参与 社区活动，“谢谢”保留早午餐，以及披露遗传和生物标记物信息。 转介到我们中心的人是通过我们的ADRC系列讲座和其他专业教育产生的 演讲、CTE会议，以及相关研究和综述论文。我们将与DMS合作 核心评价我们招聘工作的有效性，并相应地改变我们的努力。