Core E: Outreach and Recruitment Core

波士顿大学阿尔茨海默病的外展，招募和参与（ORE）核心 研究中心（ADRC）将追求三个主要目标：（1）推广，参与，并告知 波士顿社区关于阿尔茨海默病（AD）和AD相关疾病（ADRD）， 传统和创新的举措，（2）促进招募和留住ADRC的参与者 临床核心（CC）队列、研究登记和附属研究项目，以及（3）与 研究教育部分（REC）在开发创新的印刷材料，课程， 研讨会，以及医疗保健专业人员，REC和其他受训人员的计划，以及将 引导新参与者转介到我们中心，增强AD/ADRD的专家和非专业知识， 可用于其他ADRC。通过提供可以参加CC队列和ADRC的受试者 附属研究，ORE核心促进国家阿尔茨海默病项目法案（NAPA）相关的里程碑 转化和临床研究;和生物标志物和诊断。ORE核心还确保 足够数量的黑人参与者参加了我们的CC队列和附属的地方和国家研究， 解决国家适应行动方案的里程碑、人口研究、精准医学和健康差距问题。矿石 核心团队将继续与我们的数据管理和统计（DMS）核心合作， 描述和跟踪参与者，并帮助临床，遗传，生物标志物和神经病理学 通过创造材料来解释研究程序，包括腰椎穿刺，PET扫描， 基因测试和大脑捐赠为了实现国家适应行动方案的目标，扩大对AD患者的支持， 他们的家庭，并提高公众意识和参与，ORE的核心合作伙伴与当地 组织，包括我们的BU ADRC社区行动理事会，马萨诸塞州ADRC， MA/NH阿尔茨海默氏症协会，波士顿VA，贝德福德VA，脑震荡遗产 基金会，波士顿市和其他团体。为了招募参与者，我们将使用创新的 计划：招聘协调员作为导航员;在与学生一起教育的同时帮助招聘 大使;通过我们的AgeWISE计划教育、留住和引导参与者进行研究; 教育和招募参与者与我们的7个步骤会谈;和我们的书籍。更多的外联活动， 招聘，保留和参与战略包括我们的主要合作伙伴关系，网站，社交媒体， 小册子，通讯，讲座，记忆筛查，诊所招聘，研讨会，参与 社区活动，“谢谢你”保留早午餐，以及遗传和生物标志物信息的披露。 我们中心的转介是由我们的ADRC系列讲座和其他专业教育产生的 讲座，CTE会议，以及相关的研究和审查文件。我们将与DMS合作 核心评估我们的招聘工作的有效性，并相应地改变我们的努力。

The Outreach, Recruitment, and Engagement (ORE) Core of Boston University Alzheimer's Disease Research Center (ADRC) will pursue three main aims: (1) to outreach to, engage with, and inform Boston communities regarding Alzheimer's disease (AD) and AD related disorders (ADRD) through traditional and novel initiatives, (2) to facilitate the recruitment and retention of participants in the ADRC Clinical Core (CC) cohort, research registry, and affiliated research projects, and (3) to collaborate with the Research Education Component (REC) in developing innovative print materials, courses, workshops, and programs for healthcare professionals, REC and other trainees, and the public that will lead to new participant referrals to our center, enhance expert and lay knowledge of AD/ADRD, and can be used in other ADRCs. By providing participants who can participate in the CC cohort and ADRC affiliated studies, the ORE core facilitates National Alzheimer's Project Act (NAPA) milestones related to Translational & Clinical Research; and Biomarkers & Diagnosis. The ORE core also ensures adequate numbers of Black participants enroll in our CC cohort and affiliated local and national studies, addressing NAPA milestone, Population Studies, Precision Medicine & Health Disparities. The ORE Core team will continue to collaborate with our Data Management and Statistics (DMS) core to characterize and track participants, and help the Clinical, Genetic, Biomarker, and Neuropathology cores by creating materials to explain research procedures including lumbar punctures, PET scans, genetic tests, and brain donation. To achieve NAPA goals, Expand Supports for People with AD and Their Families, and Enhance Public Awareness and Engagement, the ORE core partners with local organizations including our BU ADRC Community Action Council, the Massachusetts ADRC, the Alzheimer's Association of MA/NH, the Boston VA, the Bedford VA, the Concussion Legacy Foundation, the City of Boston, and other groups. To enroll participants, we will use innovative programs: recruitment coordinators as Navigators; aiding recruitment while educating with Student Ambassadors; educating, retaining, and guiding participants into research with our AgeWISE program; educating and recruiting participants with our 7 Steps Talks; and our books. Additional outreach, recruitment, retention, and engagement strategies include our key partnerships, website, social media, brochures, newsletters, talks, memory screenings, clinic recruitment, seminars, participation at community events, “Thank You” retention brunch, and disclosure of genetic and biomarker information. Referrals to our center are generated by our ADRC Lecture Series and other professional education talks, CTE Conference, as well as relevant research and review papers. We will work with the DMS core to evaluate the effectiveness of our recruitment efforts and alter our efforts accordingly.