Core E: Outreach and Recruitment Core

核心 E：外展和招聘核心

• 批准号: 10652570
• 负责人: Andrew Budson
• 金额: $ 29.39万
• 依托单位: BOSTON UNIVERSITY MEDICAL CAMPUS
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10652570
• 关键词: Address; Affect; Alzheimer' s Disease; Alzheimer' s disease related dementia; Awareness; Biological Markers; Black race; Books; Boston; Brain; Brain Concussion; Cities; Clinic; Clinical; Clinical Data; Clinical Research; Clinical Trials; Cognitive; Collaborations; Communities; Community Actions; Country; Data; Diagnosis; Disclosure; Educational workshop; Ensure; Event; Family; Foundations; Funding; Genetic; Goals; Health Professional; Healthcare Systems; Individual; Knowledge; Massachusetts; Memory; Methods; New Hampshire; Newsletter; Pamphlets; Paper; Participant; Patient Recruitments; Persons; Population Study; Positron-Emission Tomography; Precision Health; Printing; Procedures; Professional Education; Reduce health disparities; Registries; Research; Research Project Grants; Sampling; Series; Spinal Puncture; Standardization; Students; Translational Research; Underrepresented Populations; United States National Institutes of Health; Universities; Veterans; Work; aging brain; anti-racism; catalyst; chronic traumatic encephalopathy; clinical center; cognitive change; cohort; community center; data management; education research; effectiveness evaluation; genetic testing; head impact; health disparity; high risk; innovation; insight; lectures; military service; neuropathology; novel; outreach; participant enrollment; participant retention; pharmacologic; precision medicine; prevent; programs; racial population; recruit; screening; social media; statistics; symposium; web site

The Outreach, Recruitment, and Engagement (ORE) Core of Boston University Alzheimer's Disease Research Center (ADRC) will pursue three main aims: (1) to outreach to, engage with, and inform Boston communities regarding Alzheimer's disease (AD) and AD related disorders (ADRD) through traditional and novel initiatives, (2) to facilitate the recruitment and retention of participants in the ADRC Clinical Core (CC) cohort, research registry, and affiliated research projects, and (3) to collaborate with the Research Education Component (REC) in developing innovative print materials, courses, workshops, and programs for healthcare professionals, REC and other trainees, and the public that will lead to new participant referrals to our center, enhance expert and lay knowledge of AD/ADRD, and can be used in other ADRCs. By providing participants who can participate in the CC cohort and ADRC affiliated studies, the ORE core facilitates National Alzheimer's Project Act (NAPA) milestones related to Translational & Clinical Research; and Biomarkers & Diagnosis. The ORE core also ensures adequate numbers of Black participants enroll in our CC cohort and affiliated local and national studies, addressing NAPA milestone, Population Studies, Precision Medicine & Health Disparities. The ORE Core team will continue to collaborate with our Data Management and Statistics (DMS) core to characterize and track participants, and help the Clinical, Genetic, Biomarker, and Neuropathology cores by creating materials to explain research procedures including lumbar punctures, PET scans, genetic tests, and brain donation. To achieve NAPA goals, Expand Supports for People with AD and Their Families, and Enhance Public Awareness and Engagement, the ORE core partners with local organizations including our BU ADRC Community Action Council, the Massachusetts ADRC, the Alzheimer's Association of MA/NH, the Boston VA, the Bedford VA, the Concussion Legacy Foundation, the City of Boston, and other groups. To enroll participants, we will use innovative programs: recruitment coordinators as Navigators; aiding recruitment while educating with Student Ambassadors; educating, retaining, and guiding participants into research with our AgeWISE program; educating and recruiting participants with our 7 Steps Talks; and our books. Additional outreach, recruitment, retention, and engagement strategies include our key partnerships, website, social media, brochures, newsletters, talks, memory screenings, clinic recruitment, seminars, participation at community events, “Thank You” retention brunch, and disclosure of genetic and biomarker information. Referrals to our center are generated by our ADRC Lecture Series and other professional education talks, CTE Conference, as well as relevant research and review papers. We will work with the DMS core to evaluate the effectiveness of our recruitment efforts and alter our efforts accordingly.

波士顿大学阿尔茨海默氏病的外展，招聘和参与（矿石）核心 研究中心（ADRC）将购买三个主要目标：（1）与 有关阿尔茨海默氏病（AD）和AD相关疾病（ADRD）的波士顿社区（通过 传统和新颖的举措，（2）促进参与者在ADRC中的招募和保留 临床核心（CC）队列，研究注册表和会员研究项目，（3）与 研究教育部分（REC）在开发创新的印刷材料，课程中， 针对医疗保健专业人员，REC和其他学员的讲习班和计划，以及将会 导致新的参与者转介我们中心，增强专家并对AD/ADRD的知识，以及 可以在其他ADRC中使用。通过提供可以参加CC队列和ADRC的参与者 会员研究，矿石核心最爱国家阿尔茨海默氏症项目法（NAPA）里程碑相关 转化和临床研究；以及生物标志物和诊断。矿石核心也确保 足够的黑人参与者参加了我们的CC队列和本地和国家研究， 解决NAPA里程碑，人口研究，精密医学与健康差异。矿石 核心团队将继续与我们的数据管理和统计（DMS）核心合作 表征和跟踪参与者，并帮助临床，遗传，生物标志物和神经病理学 核心通过创建材料来解释研究程序，包括腰椎穿刺，PET扫描， 基因检测和脑捐赠。为了实现NAPA目标，扩大对AD的人的支持和 他们的家人，并提高公众意识和参与，矿石与当地的核心合作伙伴 包括我们的BU ADRC社区行动委员会，马萨诸塞州ADRC在内的组织 马萨诸塞州阿尔茨海默氏症协会，波士顿弗吉尼亚州，贝德福德弗吉尼亚州，脑震荡遗产 基金会，波士顿市和其他团体。要注册参与者，我们将使用创新 计划：作为导航员的招聘协调员；在与学生教育的同时协助招聘 大使；通过我们的Agewise计划教育，保留和指导参与者进行研究； 通过我们的7个步骤会谈教育和招募参与者；和我们的书。额外的宣传， 招聘，保留和参与策略包括我们的主要合作伙伴关系，网站，社交媒体， 小册子，新闻通讯，会谈，记忆筛查，诊所招聘，半少数，参与 社区活动，“谢谢”保留早午餐以及遗传和生物标志物信息的披露。 我们的中心推荐是由我们的ADRC讲座和其他专业教育产生的 会谈，CTE会议以及相关研究和审查论文。我们将与DMS合作 核心评估我们招聘工作的有效性并相应地改变我们的努力。