Genes & environment: education to involve communities

基因

• 批准号: 6778244
• 负责人: Linda A. McCauley
• 金额: $ 20.81万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-30 至 2007-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6778244
• 关键词: behavioral /social science research tag; clinical research; community; cooperative study; environmental health; environmental toxicology; ethics; gene environment interaction; genetic susceptibility; health care model; health care policy; health education; health related legal; human subject; interview; medically underserved population; model design /development

DESCRIPTION (provided by applicant) This project is designed to promote public understanding of the social, ethical and legal implications of research on genetic susceptibility to environmental toxicants. In recognition of the potential impact of genetic science developments in the 21st century, the investigators propose a broad partnership of schools, unions and workers, scientists, and minority communities to develop a forum to share views on socio-ethical issues related to gene-environmental research and to educate all parties on these views. The four communities represented in this project are environmental scientists, labor advocacy groups, environmental justice community organizers and youth educators. Each of these four partners brings a unique and valuable view to the development of outreach and educational programs around issues of gene-environmental susceptibility. The project will assess community readiness to focus on this issue, develop community-driven educational and outreach programs and develop mechanisms for ongoing dialogue as the science develops and community issues emerge. The broader view of this project is that these activities will provide an arena for these four communities to come together and share each group 's perspectives of the issues of importance in areas of gene-environmental susceptibility. The stages of the design of this project start with work within each community partner and build to activities in which the communities work together to share each others' perspective on the issues of interest.

描述（由申请人提供） 该项目旨在促进公众对环境毒物遗传易感性研究的社会、伦理和法律影响的理解。 认识到遗传科学发展在 21 世纪的潜在影响，研究人员建议学校、工会和工人、科学家和少数群体建立广泛的伙伴关系，建立一个论坛，就与基因环境研究相关的社会伦理问题分享观点，并就这些观点对各方进行教育。 该项目的四个社区包括环境科学家、劳工倡导团体、环境正义社区组织者和青年教育工作者。 这四个合作伙伴中的每一个都为围绕基因环境易感性问题的外展和教育计划的发展带来了独特且有价值的观点。 该项目将评估社区是否准备好关注这一问题，制定社区驱动的教育和外展计划，并随着科学的发展和社区问题的出现制定持续对话的机制。 该项目更广泛的观点是，这些活动将为这四个社区提供一个聚集在一起并分享每个群体对基因环境易感性领域重要问题的观点的舞台。 该项目的设计阶段从每个社区合作伙伴内部的工作开始，并逐步发展为社区共同努力分享彼此对感兴趣问题的观点的活动。