Vermont Cancer Survivor Surveillance System

描述（由申请人提供）：这项R-21申请的目标是与癌症生存社区合作，帮助改善他们的生活质量。贫穷、识字率低和农村化可能导致癌症治疗、癌症生存能力和治疗完成后生活质量方面的健康差距。我们的目标将有助于澄清低收入和教育，以及农村居住在癌症幸存者未满足的需求中的作用。该提案由研究人员和癌症幸存者撰写，我们计划在实施该提案的两年中扩大我们的合作。该提案有两个主要目标。在目标1中，我们将与佛蒙特州癌症幸存者社区建立合作伙伴关系，监督规划、实施、分析和报告结果。作为目标1的一部分，我们将建立一个以区域人口为基础的多用途癌症幸存者登记处，其中包括长期和短期幸存者。在目标2中，我们将描述癌症幸存者在以下领域未满足的癌症相关需求：治疗;信息和决策支持;情感、社会和精神;身体;日常生活活动和后勤;健康和保健;经济和法律的;以及导航服务提供系统。我们将通过以下个人特征和历史来描述这些需求：农村居民，教育，收入，诊断阶段，自诊断以来的时间，人口统计学（性别，年龄），治疗类型（放射治疗，手术，化疗）和健康保险。我们假设，农村居民，低收入和教育，年龄较大和较年轻，较短的时间，因为诊断和诊断的晚期疾病将各自对未满足的生存需求有显着的独立影响。此外，我们将创造一个环境，使社区参与研究过程和议程。我们将制定、收集和分析过程措施，使我们能够不断从社区参与的过程中学习，并报告我们的经验教训。我们将使用定性和定量的方法来实现我们的目标。我们认为，我们的建议是更强大的，从我们的伙伴关系与幸存者，我们的研究更有可能取得成功，因为以社区为基础的参与性研究。公共卫生相关性：这项R-21应用的目标是与癌症幸存者社区合作，帮助改善他们的生活质量。贫穷、识字率低和农村化可能导致癌症治疗、癌症生存能力和治疗完成后生活质量方面的健康差距。

DESCRIPTION (provided by applicant): The goal of this R-21 application is to work with the cancer survivorship community to help improve their quality of life. Poverty, low literacy skills and rurality can lead to health disparities in cancer treatment, the ability to survive cancer and the quality of life after treatment is completed. Our aims will help clarify the role of low income and education, and rural residency in the unmet needs of cancer survivors. This proposal was written by researchers and cancer survivors, and we plan to expand our collaborations throughout the two years of implementing this proposal. There are 2 main aims in this proposal. In Aim 1 we will develop a collaborative partnership with the Vermont cancer survivor community that will oversee the planning, implementation and analyzing and reporting of results. As part of Aim 1 we will develop a regional population-based multi-purpose cancer survivor registry that will include both long term and short term survivors. In Aim 2 we will describe the unmet cancer}related needs of cancer survivors in the following areas: treatment; information and decision support; emotional, social and spiritual; physical; activities and logistics of daily living; health and wellness; economic and legal; and navigating service delivery systems. We will describe these needs by the following personal characteristics and history: rural residency, education, income, stage of diagnosis, time since diagnosis, demographics (gender, age), types of treatment (radiation therapy, surgery, chemotherapy), and health insurance. We hypothesize that rural residency, low income and education, older and younger age, shorter time since diagnosis and diagnosis of late-stage disease will each have significant independent effects on the unmet survivorship needs. In addition we will create an environment that engages the community in the research process and agenda. We will develop, collect and analyze process measures that will enable us to continually learn from the process of community participation and to report on our lessons learned. We will use both qualitative and quantitative methods to accomplish our aims. We believe that our proposal is stronger from our partnership with survivors and that our study is more likely to be successful because of community-based participatory research. PUBLIC HEALTH RELEVANCE: The goal of this R-21 application is to work with the cancer survivorship community to help improve their quality of life. Poverty, low literacy skills and rurality can lead to health disparities in cancer treatment, the ability to survive cancer and the quality of life after treatment is completed.