Vermont Cancer Survivor Surveillance System

描述(由申请人提供)：这份R-21申请的目标是与癌症幸存者社区合作，帮助提高他们的生活质量。贫穷、低识字技能和乡村生活可能导致癌症治疗中的健康差距、癌症的生存能力和治疗结束后的生活质量。我们的目标将有助于澄清低收入和教育以及农村居民在癌症幸存者未得到满足的需求中的作用。这项提案是由研究人员和癌症幸存者撰写的，我们计划在实施这项提案的两年内扩大我们的合作。这项建议有两个主要目的。在目标1中，我们将与佛蒙特州癌症幸存者社区建立合作伙伴关系，监督结果的规划、实施、分析和报告。作为目标1的一部分，我们将建立一个以人口为基础的多用途癌症幸存者登记系统，其中将包括长期和短期幸存者。在目标2中，我们将描述癌症幸存者在以下领域未得到满足的与癌症有关的需求：治疗；信息和决策支持；情感、社会和精神；身体；日常生活的活动和后勤；健康和健康；经济和法律；以及导航服务提供系统。我们将通过以下个人特征和历史来描述这些需求：农村居民、教育、收入、诊断阶段、自诊断以来的时间、人口统计(性别、年龄)、治疗类型(放射治疗、手术、化疗)和医疗保险。我们假设，农村户口、低收入和低教育程度、年龄大小、确诊和确诊晚期疾病的时间较短都会对未得到满足的生存需求产生显著的独立影响。此外，我们将创造一个让社区参与研究进程和议程的环境。我们将制定、收集和分析进程措施，使我们能够不断从社区参与进程中学习，并报告我们吸取的教训。我们将采用定性和定量相结合的方法来实现我们的目标。我们认为，通过与幸存者的合作，我们的建议更加有力，而且我们的研究更有可能成功，因为我们的研究是以社区为基础的参与性研究。公共卫生相关性：R-21应用程序的目标是与癌症存活者社区合作，帮助提高他们的生活质量。贫穷、低识字技能和乡村生活可能导致癌症治疗中的健康差距、癌症的生存能力和治疗结束后的生活质量。

DESCRIPTION (provided by applicant): The goal of this R-21 application is to work with the cancer survivorship community to help improve their quality of life. Poverty, low literacy skills and rurality can lead to health disparities in cancer treatment, the ability to survive cancer and the quality of life after treatment is completed. Our aims will help clarify the role of low income and education, and rural residency in the unmet needs of cancer survivors. This proposal was written by researchers and cancer survivors, and we plan to expand our collaborations throughout the two years of implementing this proposal. There are 2 main aims in this proposal. In Aim 1 we will develop a collaborative partnership with the Vermont cancer survivor community that will oversee the planning, implementation and analyzing and reporting of results. As part of Aim 1 we will develop a regional population-based multi-purpose cancer survivor registry that will include both long term and short term survivors. In Aim 2 we will describe the unmet cancer}related needs of cancer survivors in the following areas: treatment; information and decision support; emotional, social and spiritual; physical; activities and logistics of daily living; health and wellness; economic and legal; and navigating service delivery systems. We will describe these needs by the following personal characteristics and history: rural residency, education, income, stage of diagnosis, time since diagnosis, demographics (gender, age), types of treatment (radiation therapy, surgery, chemotherapy), and health insurance. We hypothesize that rural residency, low income and education, older and younger age, shorter time since diagnosis and diagnosis of late-stage disease will each have significant independent effects on the unmet survivorship needs. In addition we will create an environment that engages the community in the research process and agenda. We will develop, collect and analyze process measures that will enable us to continually learn from the process of community participation and to report on our lessons learned. We will use both qualitative and quantitative methods to accomplish our aims. We believe that our proposal is stronger from our partnership with survivors and that our study is more likely to be successful because of community-based participatory research. PUBLIC HEALTH RELEVANCE: The goal of this R-21 application is to work with the cancer survivorship community to help improve their quality of life. Poverty, low literacy skills and rurality can lead to health disparities in cancer treatment, the ability to survive cancer and the quality of life after treatment is completed.