Tools for Coordination Among Caregivers of Alzheimer's Disease Patients

阿尔茨海默病患者护理人员之间的协调工具

• 批准号: 8464462
• 负责人: Gregory John Seifert
• 金额: $ 16.67万
• 依托单位: ADVANCED MEDICAL ELECTRONICS CORPORATION
• 依托单位国家: 美国
• 财政年份: 2012
• 资助国家: 美国
• 起止时间: 2012-09-25 至 2015-03-24
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8464462
• 关键词: Age; Alzheimer' s Disease; American; Appointment; Assisted Living Facilities; Behavioral; Caregivers; Caring; Child; Clinical; Complex; Computers; Confusion; Data; Data Security; Databases; Dementia; Devices; Discipline of Nursing; Effectiveness; Elderly; Electronics; Evaluation; Event; Facility Designs; Family Caregiver; Family member; Focus Groups; Friends; Fright; Frustration; Future; Grief reaction; Health Services Research; Healthcare; Height; Home environment; Impaired cognition; Individual; Internet; Intervention; Investigation; Knowledge; Lead; Left; Life; Life Experience; Long-Term Care; Memory; Memory Loss; Memory impairment; Mental Depression; Metadata; Names; Nonverbal Communication; Patients; Personal Satisfaction; Personality; Pharmaceutical Preparations; Phase; Pilot Projects; Population; Privacy; Progressive Disease; Publishing; Quality of life; Risk; Secure; Self Care; Services; Siblings; Source; Staging; Symptoms; System; Technology; Telephone; Time; Universities; Work; caregiving; computerized; cost; economic cost; experience; life history; loved ones; meetings; prototype; self esteem; tool

DESCRIPTION (provided by applicant): Recent studies have observed that reminiscence intervention is effective for increasing self- esteem and decreasing behavioral disturbances in individuals with dementia. The use of personalized reminiscence therapy for each Alzheimer's patient can be a powerful tool for care providing staff in a nursing facility. Various groups have developed tools for the creation of media that can be used for personalized reminiscence therapy. These tools edit together life history stories, audio, pictures and video of an Alzheimer' patient's past. Unfortunately the creation of a database of each patient's life in the form of fact, events, photos, and video to do reminiscence intervention can be a major undertaking. It is difficult for busy staff caregivers to acquire and retain knowledge of each patient's personal life experiences. When new caregivers begin to work with existing Alzheimer's patients, they need modern tools that they are accustom to using to acquire information about each of their patients life history. Multiple sources of information, such as the patient's siblings, friends and children may be needed to form a more complete set of useful data. A tool is proposed to generate a secure personalized reminiscence database for each dementia patient. Current and future staff caregivers will be able to securely access this information for use in the care and therapy of each Alzheimer's patient. PUBLIC HEALTH RELEVANCE: Alzheimer's disease (AD) is the leading cause of dementia. It is estimated that in 2009, 5.3 million Americans have AD. As the population ages, the number of people with AD will continue to increase to an estimated 7.7 million in 2030 and 11 to 16 million in 2050. The economic costs of treating and caring for people with AD are substantial. Healthcare and long-term care services cost three times as much for individuals with AD or dementia. AD is a progressive disease that often begins with forgetfulness. In the early stages of AD people may have trouble remembering recent events or the names of familiar people or things. As AD progresses to middle stage, memory loss and confusion increase and people may have difficulty even recognizing family members, remembering appointments, or to take medication. When an individual begins to experience cognitive loss there may be various behavioral consequences. They may experience changes in personality, a lesser sense of self, and a loss of independence. This can lead to symptoms which are challenges to caregivers. Examples of these are high levels of depression, grief, fear, and frustration, all of which have a significant impact on the well-being of the individual.

描述（由申请人提供）：最近的研究发现，回忆干预对于增强痴呆症患者的自尊和减少行为障碍有效。对每位阿尔茨海默氏症患者使用个性化记忆疗法可以成为护理机构护理人员的有力工具。各个团体已经开发了用于创建可用于个性化回忆疗法的媒体的工具。这些工具将阿尔茨海默氏症患者过去的生活史故事、音频、图片和视频编辑在一起。不幸的是，以事实、事件、照片和视频的形式创建每个患者生活的数据库来进行回忆干预可能是一项艰巨的任务。忙碌的护理人员很难获取并保留每个患者个人生活的知识 经验。当新的护理人员开始与现有的阿尔茨海默病患者一起工作时，他们需要习惯使用的现代工具来获取有关每个患者生活史的信息。多种信息来源，例如患者的兄弟姐妹、朋友和孩子 可能需要形成一组更完整的有用数据。提出了一种工具来为每个痴呆症患者生成安全的个性化记忆数据库。当前和未来的护理人员将能够安全地访问这些信息，以用于每位阿尔茨海默病患者的护理和治疗。 公共卫生相关性：阿尔茨海默氏病 (AD) 是痴呆症的主要原因。据估计，2009年有530万美国人患有AD。随着人口老龄化，AD 患者数量将继续增加，预计到 2030 年将达到 770 万，到 2050 年将增加到 11 至 1600 万。治疗和护理 AD 患者的经济成本巨大。对于 AD 或痴呆症患者来说，医疗保健和长期护理服务的费用是其三倍。 AD 是一种进行性疾病，通常始于健忘。在 AD 的早期阶段，人们可能难以记住最近发生的事件或熟悉的人或事物的名字。当 AD 发展到中期时，记忆力减退和意识混乱会加剧，人们甚至可能难以认出家人、记住约会或服药。当一个人开始出现认知丧失时，可能会出现各种行为后果。他们可能会经历性格的变化、自我意识的减弱以及独立性的丧失。这可能会导致对护理人员来说是挑战的症状。例如，高度抑郁、悲伤、恐惧和沮丧，所有这些都会对个人的福祉产生重大影响。