Coping with Cancer: A Program for the Deaf Community in American Sign Language

描述（由申请人提供）：聋人社区与其他少数民族社区一样，在获得良好的健康信息和护理方面经历了许多相同的障碍。然而，与其他少数民族社区相比，很少有研究调查聋人社区的健康差异。我们长期建立的社区-校园合作伙伴关系已经采取了一系列措施来解决聋人社区的需求，包括培训聋人文化和美国手语（ASL）的卫生保健提供者，提高美国手语口译员对健康相关信息的理解，以及开发美国手语教育项目，以促进癌症的预防和早期发现。目前还缺乏一个从诊断到治疗和生存的角度向聋人社区传授癌症知识的项目。在这个项目中，我们的合作伙伴将创建一个新的创新教育项目，名为“应对癌症：美国手语聋人社区项目”。这将是一个用美国手语制作的癌症教育视频三部曲，配有字幕和画外音，这将使聋人社区的成员和他们的亲人能够获得听力正常的人在癌症诊断、治疗和生存过程中所拥有的信息。这三个视频将重点关注：1)诊断过程和医疗决策；2)常见的癌症治疗；3)应对和控制癌症，维持生活质量。三个视频制作完成后，每个视频将在全国随机对照试验中进行科学测试，对照组交叉，以评估每个视频增加聋人对癌症诊断，治疗和管理知识的能力。这些视频也将被测试，看看它们是否积极地改变了聋人应对癌症挑战的信心，特别是在基线（干预前）、干预后立即和两个月的随访中测量知识、自我效能和宿命论的变化。在这项研究中，实验组的聋人将会看到三个新开发的癌症视频中的一个。控制组成员将首先观看一段锻炼视频，然后被邀请进入实验组观看一段有关癌症的视频。基线数据收集还将包括人口统计、健康状况、健康素养、聋人文化适应和健康控制点措施，以使研究人员确定参与者的个人特征是否对教育计划有中等反应。为期两个月的随访将决定是否能长期保持疗效。如果这一教育项目有效，将对公众健康产生直接和长期的好处。该项目将立即提高全国聋人社区对癌症诊断、治疗和生存问题的认识和理解。聋人社区和他们的亲人以及为聋人社区服务的医疗保健专业人员可以在任何地方免费访问将要创建的程序。这将带来长期的好处，提供一套教育工具，可以持续不断地教育社区。

DESCRIPTION (provided by applicant): The Deaf community experiences many of the same barriers to good health information and care as other minority communities. However, in comparison to other minority communities, very little research has examined health disparities in the Deaf community. Our long-established community-campus partnership has taken a number of steps to addressing the needs of the Deaf community, including training of health care providers in Deaf culture and American Sign Language (ASL), improving ASL interpreters' understanding of health-related information, and developing education programs in ASL to promote cancer prevention and early detection. Still lacking is a program to teach the Deaf community about cancer from the point of diagnosis through treatment and survivorship. In this project, our partnership will create a new and innovative education program called Coping with Cancer: A Program for the Deaf Community in American Sign Language. This will be a trilogy of cancer education videos in ASL with captioning and voiceover that will give members of the Deaf community and their loved ones access to the kind of information that hearing people have when the diagnostic, treatment and survivorship processes are underway for cancer. The three videos will focus on: 1) the diagnostic process and medical decision-making; 2) common cancer treatments; and 3) coping with and managing cancer and maintaining quality of life. After the three videos are developed, each will be scientifically tested in a national randomized controlled trial with control group cross-over to assess each video's capacity to increase the knowledge Deaf persons have about cancer diagnosis, treatment, and management. The videos will also be tested to see if they positively change Deaf persons' confidence for dealing with the challenges presented by cancer, specifically measuring changes in knowledge, self-efficacy, and fatalism at baseline (pre- intervention), immediate post-intervention, and two-month follow-up. Deaf individuals in the experimental group in this study will see one of the three newly developed cancer videos. Control group members will initially see an exercise video and then will be invited to cross over into the experimental group to view one of the cancer videos. Baseline data collection will also include demographic, health status, health literacy, Deaf acculturation, and health locus of control measures to allow the researchers to determine whether personal characteristics of the participants moderate response to the education program. The two-month follow-up will determine whether gains are maintained over time. If this educational program is effective, there will be both immediate and long term public health benefits. The program will have the immediate effect of increasing knowledge and understanding of cancer diagnosis, treatment, and survivorship issues in the Deaf community nationwide. The programs that will be created can be accessed anywhere and without cost by the Deaf community and their loved ones, as well as healthcare professionals who serve the Deaf community. This will have the long term benefit of providing a set of educational tools that can continue to educate the community on an ongoing basis.