NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry

描述（申请人提供）：提出了一个全面的计划，以促进招募人类颞骨捐赠者，捐赠标本的积累和分发到活跃的实验室，经纪人的特殊需要的研究调查人员使用人类耳科材料，教育工作，包括短期的，为专业人士提供耳病理学的长期培训机会，并为公众和感兴趣的专业人士（包括科学家）提供教育推广，器官获取专家和生物学家这将通过建立和维持一个协调一致的颞骨登记办公室来实现。拟议的书记官处职能将由Joseph B监督。小纳多尔，M.D.和M.查尔斯·利伯曼博士，（共同主要研究者）。将帮助监督登记研究活动的合作研究者将包括在促进人类颞骨组织病理学方面具有经验和专业兴趣的人员名单。这些将包括迈克尔J麦肯纳，医学博士，史蒂芬D。Rauch，MD，Joe C.亚当斯博士，Alicia Quesnel医学博士和Felipe桑托斯医学博士。登记研究的NIDCD项目协调员将提供额外监督，该协调员将帮助选择指导委员会，包括登记研究的PI、项目协调员和2至3名了解和理解耳病理学和基础耳科研究价值的外部科学家。

DESCRIPTION (provided by applicant): A comprehensive program is proposed to facilitate recruitment of human temporal bone donors, accrual and distribution of donated specimens to active laboratories, brokering of special needs of research investigators using human otologic material, educational efforts including short-term training opportunities in Otopathology for the profession and providing educational outreach to the public and interested professionals including scientists and organ procurement specialists and undertakers. This will be accomplished through the development and maintenance of a coordinated Temporal Bone Registry Office. The proposed Registry function will be overseen by Joseph B. Nadol, Jr., M.D. and M. Charles Liberman, Ph.D., (Co-Principal Investigators). Co- Investigators who will help to supervise the activities of the Registry will include a list of individuals with experience and professional interest in furtherance of human temporal bone histopathology. These will include Michael J. McKenna, MD, Steven D. Rauch, MD, Joe C. Adams, Ph.D., Alicia Quesnel, MD, and Felipe Santos, MD. Additional oversight will provided by the NIDCD Program Coordinator for the Registry who will help in the selection of a Steering Committee including the PI of the Registry, the Project Coordinator and 2 to 3 external scientists with an understanding and appreciation of the value of otopathology and basic otologic research.