A Culturally-Relevant Approach to Reducing Dementia Caregiver Stress in an Underserved Population

减少服务不足人群中痴呆症护理人员压力的文化相关方法

• 批准号: 9341060
• 负责人: OANH L MEYER
• 金额: $ 12.89万
• 依托单位: UNIVERSITY OF CALIFORNIA AT DAVIS
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-01 至 2020-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9341060
• 关键词: Acculturation; Address; Affect; Aging; Alzheimer' s Disease; American; Area; Asian Americans; Asians; Award; Behavior; Belief; Caregiver Burden; Caregivers; Caring; Center for Translational Science Activities; Clinical Sciences; Communities; Community Outreach; Complement; Cultural Diversity; Data; Data Analyses; Data Collection; Dementia; Dementia caregivers; Development; Diagnosis; Distress; Effectiveness of Interventions; Elderly; Emotional; Employee Strikes; Ethnic group; Exercise; Family; Family Caregiver; Family member; Feedback; Focus Groups; Foundations; Funding; Goals; Health; Immigrant; Impaired cognition; Individual; Intervention; Intervention Studies; Knowledge; Language; Lead; Linguistics; Managed Care; Mental Health; Mentored Research Scientist Development Award; Mentors; Mentorship; Methodology; Methods; Minority; Modeling; Nature; Outcome; Persons; Play; Population; Population Heterogeneity; Psychological Theory; Psychologist; Public Health; Randomized Controlled Trials; Recruitment Activity; Research; Research Activity; Research Personnel; Research Project Grants; Research Training; Resources; Risk; Risk Factors; Role; Self Efficacy; Services; Stress; Stress and Coping; Study Section; Subgroup; Tai Ji; Testing; Training; Translating; Trauma; Underserved Population; United States National Institutes of Health; Vietnam; War; Work; base; care recipients; career; career development; caregiver interventions; caregiving; community based participatory research; coping; data format; dementia caregiving; design; disparity reduction; environmental enrichment for laboratory animals; ethnic diversity; ethnic minority population; evidence base; experience; group intervention; health care service utilization; health disparity; improved; innovation; intergenerational; literacy; mindfulness; multi-component intervention; novel; physical conditioning; primary caregiver; primary outcome; psychosocial; psychosocial development; public health relevance; racial and ethnic; research and development; skills; skills training; social; theories; therapy development

 DESCRIPTION (provided by applicant): Asian Americans currently are the fastest growing ethnic group in the U.S., thus, the number of Asian Americans with Alzheimer's disease (AD) and their family caregivers will also increase. Surprisingly, very little intervention work has focused on addressing caregiver needs in this population. Specifically, a large gap exists in the development of interventions to reduce caregiver stress and little is known about how cultural diversity impacts caregiver stress and intervention outcomes. This Mentored Research Scientist Development Award (K01) will give Dr. Meyer the skills, training, and mentoring necessary to conduct community-engaged interventions to reduce the burden of AD in culturally diverse family caregivers. The proposed mentored research activities for this K01 award are to refine and pilot test a theoretically-informed, culturally-relevant, community-based intervention informed by sociocultural stress and coping and social contextual models to reduce distress and enhance well-being in Vietnamese American dementia caregivers. By focusing on this large and underserved population, this K01 application is consistent with NIA Research Goal E: Improve our ability to reduce health disparities and eliminate health inequities among older adults. It als responds to the National Alzheimer's Project Act (NAPA) to involve more racially/ethnically diverse older adults in research and to develop effective services to support ethnically diverse families. This application includes experiential and research activities in three critical areas fo Dr. Meyer's career development: (1) knowledge of AD and associated dementias (e.g., risk factors, assessment and diagnosis, course) and cognitive impairment and how they affect families, (2) methodological skills and cultural knowledge to conduct community-engaged intervention research, including formal training in aspects of community-based participatory research (e.g. mixed methods) and enhanced knowledge of Vietnamese culture and language, and (3) theoretical and methodological skills necessary to design, implement, and analyze scientifically rigorous interventions for culturally diverse populations (e.g., design issues, longitudinal data analysis). Mentored research training will occur in the context of a focused research project with two aims: (1) Refine and manualize a culturally- informed intervention to reduce distress and enhance well-being in Vietnamese dementia caregivers, and (2) Examine the feasibility and acceptability of the pilot intervention in a randomized controlled trial. Completion of the proposed research and career development activities will generate data to inform the development of an R34 or R21 application and provide Dr. Meyer with the experience necessary to transition from observational/ descriptive to community-based intervention work. Dr. Meyer will leverage existing resources and expertise at three NIH-funded centers at UC Davis: the Alzheimer's disease Center, the Resource Center for Minority Aging Research, and the Clinical and Translational Science Center. These resources, along with the mentoring team's strong, collaborative relationships with local community-based organizations will provide an enriched environment that will help Dr. Meyer to be a successful and independent investigator.

 描述(申请人提供)：亚裔美国人目前是美国增长最快的种族群体，因此，患有阿尔茨海默病(AD)的亚裔美国人及其家庭照顾者的数量也将增加。令人惊讶的是，很少有干预工作专注于解决这一人群中照顾者的需求。具体地说，在制定减少照顾者压力的干预措施方面存在很大差距，对文化多样性如何影响照顾者压力和干预结果知之甚少。这项指导研究科学家发展奖(K01)将为迈耶博士提供必要的技能、培训和指导，以实施社区参与的干预措施，以减轻不同文化背景的家庭照顾者的AD负担。该K01奖项的拟议指导研究活动是完善和试点一种理论上知情的、与文化相关的、以社区为基础的干预措施，该干预措施由社会文化压力以及应对和社会背景模式提供信息，以减少越南裔美国痴呆症照顾者的痛苦并提高他们的幸福感。通过关注这一庞大且服务不足的人群，这一K01应用程序与NIA研究目标E：提高我们减少老年人健康差距和消除健康不平等的能力是一致的。它还响应国家阿尔茨海默氏症项目法案(NAPA)，让更多种族/民族多元化的老年人参与研究，并开发有效的服务来支持种族多元化家庭。这一应用包括迈耶博士职业发展的三个关键领域的经验和研究活动：(1)AD和相关痴呆(例如，风险因素、评估和诊断、课程)和认知障碍的知识，以及它们如何影响家庭；(2)进行社区参与干预研究的方法技能和文化知识，包括社区参与性研究方面的正式培训(例如，混合方法)和对越南文化和语言的增强知识；以及(3)为不同文化背景的人群设计、实施和分析科学严格的干预措施所需的理论和方法技能(例如，设计问题，纵向数据分析)。指导研究培训将在一个有两个目标的重点研究项目的背景下进行：(1)完善和手册文化干预措施，以减少越南痴呆症照顾者的痛苦并提高他们的幸福感；(2)在随机对照试验中检查试点干预措施的可行性和可接受性。拟议研究和职业发展活动的完成将产生数据，为R34或R21应用程序的开发提供信息，并为迈耶博士提供从观察性/描述性工作过渡到以社区为基础的干预工作所需的经验。迈耶博士将利用加州大学戴维斯分校NIH资助的三个中心的现有资源和专业知识：阿尔茨海默病中心、少数族裔老龄化研究资源中心以及临床和翻译科学中心。这些资源，加上指导团队与当地社区组织之间强大的合作关系，将提供一个丰富的环境，帮助迈耶博士成为一名成功和独立的研究员。