SIP22-003: Improving and evaluating measures to identify tics and tic disorders including Tourette syndrome in children in epidemiologic studies and clinic settings

SIP22-003：在流行病学研究和临床环境中改进和评估识别儿童抽动和抽动障碍（包括抽动秽语综合征）的措施

• 批准号: 10680513
• 负责人: STEVEN L BARNETT
• 金额: $ 26.29万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-30 至 2024-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10680513
• 关键词: SIP22; 003; Improving; evaluating; measures

Deaf sign language users and people with hearing loss comprise health disparity populations overlooked by most public health research, surveillance and programs. The mission of the Rochester Prevention Research Center (RPRC) is to promote health and prevent disease with populations of Deaf American Sign Language (ASL) users and people with hearing loss through community-based participatory research (CBPR). A RPRC goal is to eliminate health disparities experienced by populations of Deaf ASL users and people with hearing loss. RPRC will work to achieve the mission and goal through five aims: Aim 1 -- To administer and maintain RPRC to carry out CBPR with its partner communities; Aim 2 -- To build RPRC capacity for community- engaged public health research and programs, and to scale those programs to reach all who would benefit; Aim 3 -- To build public health and healthcare infrastructure through training programs that increase the nation's capacity to: 1) conduct health promotion programs designed to reach deaf people and people with hearing loss, and 2) include deaf people and people with hearing loss in the public health workforce; Aim 4 -- To disseminate RPRC products and services to key audiences; Aim 5 -- To conduct an applied public health prevention research project to further the implementation, dissemination, and translation into practice of Deaf Weight Wise (DWW), an evidence-based intervention to promote healthy physical activity, diet and weight with Deaf ASL users. The overall goal of this RPRC implementation research project is to study with diverse partners the approaches and strategies that lead to successful implementation of DWW. This research is responsive to the Deaf community in that it focuses on: 1) obesity, a health disparity that the Deaf community selected as a research priority, 2) implementation and the request that RPRC translate DWW from research into a health program that is available to those who would benefit, and 3) scalability and the request that the benefits of RPRC research be extended to reach Deaf communities outside of Rochester NY. RPRC accomplishments at the end of this funding period will include: enhanced capacity for CBPR with communities of Deaf sign language users and people with hearing loss; data to inform implementation strategies and scale to connect Deaf Weight Wise programs with deaf communities; expanded RPRC reach, with stronger and new partnerships with deaf communities and implementation partners within and outside of Rochester NY; communications and products, in English and American Sign Language, to inform communities, researchers, and other stakeholders of RPRC methods, results, programs, and services. RPRC activities support the Healthy People 2020 (HP2020) goal to promote the health and well-being of people with disabilities. RPRC research aligns with CDC Chronic Disease Prevention Domains, CDC HI-5 interventions, and other HP2020 goals.

聋人手语使用者和听力损失者构成了被忽视的健康差异人群， 大多数公共卫生研究、监测和项目。罗切斯特预防研究的使命 中心（RPRC）是促进健康和预防疾病的人口聋人美国手语 (ASL)通过基于社区的参与性研究（CBPR），帮助听力损失患者和用户。A RPRC 目标是消除聋人ASL使用者和听力正常者的健康差异 损失RPRC将通过五个目标来实现其使命和目标：目标1 -管理和维护 难民救济和重建委员会与其伙伴社区一起开展社区重建工作;目标2 -建立难民救济和重建委员会的能力， 参与公共卫生研究和项目，并扩大这些项目的规模，使所有人受益; 目标3 -通过培训方案建立公共卫生和保健基础设施， 国家的能力：1）开展旨在接触聋人和残疾人的健康促进方案 （2）将聋人和听力损失者纳入公共卫生工作队伍;目标4 - 向主要受众传播RPRC的产品和服务;目标5 -开展应用公共卫生 预防研究项目，以进一步实施，传播和转化为实践聋人 体重明智（DWW），一种基于证据的干预措施，以促进健康的身体活动，饮食和体重， 聋哑美国手语使用者。这个RPRC实施研究项目的总体目标是研究不同的 合作伙伴的方法和战略，导致成功实施DWW。本研究是 响应聋人社区，它的重点是：1）肥胖，聋人社区的健康差距， 被选为研究重点，2）实施和要求RPRC将DWW从研究翻译出来 变成一个健康计划，可供那些谁会受益，和3）可扩展性和要求， RPRC研究的好处可以扩展到罗切斯特纽约以外的聋人社区。RPRC 本资助期结束时的成就将包括：增强社区CBPR的能力 聋人手语使用者和听力损失者;为实施战略和规模提供信息的数据 将聋人体重明智计划与聋人社区联系起来;扩大RPRC的覆盖范围， 与纽约州罗切斯特内外的聋人社区和实施伙伴建立伙伴关系; 沟通和产品，在英语和美国手语，告知社区，研究人员， RPRC方法、结果、计划和服务的其他利益相关者。区域方案审查委员会的活动支持 健康人2020（HP 2020）的目标是促进残疾人的健康和福祉。RPRC 研究与CDC慢性病预防领域，CDC HI-5干预措施和其他HP 2020保持一致 目标.