SURVEY OF OUTCOMES OF VERY LOW BIRTH WEIGHT INFANTS (401-1500 GRAMS) (GDB)

这个子项目是许多研究子项目中的一个 由NIH/NCRR资助的中心赠款提供的资源。子项目及 研究者（PI）可能从另一个NIH来源获得了主要资金， 因此可以在其他CRISP条目中表示。所列机构为 研究中心，而研究中心不一定是研究者所在的机构。 本研究的目的是提供极低出生体重儿的基线和结局数据登记，这些数据是根据参加NICHD新生儿研究网络的机构的新生儿重症监护室（NICU）以统一方式收集的数据。 这些数据代表了一些主要的三级保健学术中心，其患者的新生儿发病率的范围。 这些数据将被用来描述入院婴儿的特征，检查某些入组特征与结局之间的关系，测量各种疾病实体的发病率趋势，并为未来的多中心研究提供假设制定的基础。 将收集出生体重为401 - 1500 g、出生后14天内入住NICU的所有活产婴儿或出生时心率高于零的婴儿的基线和结局数据。 这些数据将通过审查母亲和婴儿的图表获得。 调查的数据表格被命名为“通用数据表格”，这是因为认识到所收集的信息具有普遍意义，而不是针对某一特定疾病或治疗。 他们提供了婴儿的背景，围产期和新生儿的经验的描述性总结。 基线数据将在入住NICU后不久获得，结局数据将在从NICU出院时获得。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The purpose of this study is to provide a registry of baseline and outcome data for very low birth weight infants, based on data collected in a uniform manner from neonatal intensive care units (NICUs) at institutions participating in the NICHD Neonatal Research Network. These data represent a number of major tertiary care academic centers, whose patients exemplify the range of neonatal morbidity. These data will be used to characterize the infants admitted to the units, to examine the relationships between certain entry characteristics and outcome, to measure trends in incidence of various disease entities, and to provide the basis of hypothesis formulation for future multicenter studies. Baseline and outcome data will be collected on all liveborn infants with birth weight from 401 to 1500 grams who are admitted to the NICUs within 14 days of birth or infants with a heart rate above zero at birth. These data will be obtained by review of the mothers' and babies' charts. The data forms for the survey have been named 'generic data forms' in recognition of the fact that the information collected is of universal interest and not specific to a particular disease or treatment. They provide a descriptive summary of the babies' background, perinatal and neonatal experience. Baseline data will be obtained soon after admission to the NICU and the outcome data will be obtained at the time of discharge from the NICU.