Cancer Prevention and Outcomes Data Shared Resource

项目摘要/摘要 UWCCC癌症预防和结果数据(C-POD)共享资源(以前的调查研究 共享资源)提供无缝、高效、最先进的项目开发、数据收集和数据 传播服务，以最大限度地影响癌症人群的健康和临床研究 UWCCC。Trentham-Dietz博士(CPC)是C-POD的系主任，拥有15年的工作经验 有开展流行病学研究、收集调查数据和支持多学科的经验 人口健康研究。张博士担任设施经理，在调查研究和 利用国家监测数据。C-POD的其余工作人员非常有资格支持UWCCC 成员，为项目规划、数据和样本收集、数据管理和资源提供服务 分享。C-POD的三个主要具体目标如下： 1)项目开发。为UWCCC会员提供设计咨询和技术支持 与癌症相关的研究包括调查、个人访谈和焦点小组。 2)数据采集。收集定量和定性数据和生物样本，使用个人和 电话采访；邮寄问卷和互联网调查；以及焦点小组。 3)数据传播。获取、存储和共享来自UWCCC癌症注册中心、威斯康星州 癌症登记，可公开获得的数据，包括国家监测数据、地方流行病学和健康 服务研究；并将UWCCC成员与其他癌症相关数据资源连接到 华盛顿大学校园，如健康创新计划和人口健康研究所。 C-POD加速获取癌症和非癌症(高危)人群的癌症相关数据，并 与其他校园资源紧密合作，促进协调和高质量的服务。与之同时 更名为C-POD，2016年添加了数据分发服务，以利用现有的 完成战略规划并评估当前和预期的研究需求后的癌症相关数据 UWCCC成员，特别是癌症护理服务研究。战略计划的实施情况是 得到UWCCC补充投资的支持，并促进了服务的扩展和戏剧性的 面向疾病的团队(DOT)的使用率增加。C-POD现在为癌症患者、肿瘤、 使用用于研究计划和试验的新型数据可视化仪表板向研究人员提供治疗数据 招聘、监测和癌症护理服务研究。C-POD工作人员的专业知识和他们的 使用大量大型数据源的经验使该团队在收集、组织、 并与UWCCC研究人员一起传播与癌症相关的数据。

PROJECT SUMMARY / ABSTRACT The UWCCC Cancer Prevention and Outcomes Data (C-POD) shared resource (formerly the Survey Research Shared Resource) provides seamless, effective, state-of-the-art project development, data collection, and data dissemination services to maximize the impact of cancer population health and clinical research at the UWCCC. Dr. Trentham-Dietz (CPC) serves as the Faculty Leader of C-POD and has > 15 years of experience in conducting epidemiologic studies, collecting survey data, and supporting multidisciplinary population health studies. Dr. Zhang serves as the Facility Manager and is experienced in survey research and utilization of national surveillance data. The remaining staff of C-POD are highly-qualified to support UWCCC members, providing services for project planning, data and sample collection, data management, and resource sharing. Three major specific aims of C-POD are as follows: 1) Project Development. Provide consultation and technical assistance to UWCCC members for designing cancer-related research studies involving surveys, personal interviews, and focus groups. 2) Data Collection. Collect quantitative and qualitative data and biological specimens using personal and telephone interviews; mailed questionnaires and internet surveys; and focus groups. 3) Data Dissemination. Acquire, store, and share data from the UWCCC cancer registry, the Wisconsin cancer registry, publicly-available data including national surveillance data, local epidemiologic and health services research studies; and connect UWCCC members with other cancer-related data resources on the UW campus, such as the Health Innovation Program and Population Health Institute. C-POD accelerates access to cancer-related data on both cancer and non-cancer (at risk) populations and works closely with other campus resources to facilitate coordinated and quality service. Concurrent with the name change to C-POD, Data Dissemination services were added in 2016 to take advantage of existing cancer-related data after completing strategic planning and assessing current and anticipated research needs of UWCCC members particularly for cancer care delivery research. Implementation of the strategic plan is supported by UWCCC supplemental investment and has facilitated an expansion of services and dramatic increase in utilization by Disease Oriented Teams (DOTs). C-POD now provides timely cancer patient, tumor, and treatment data to researchers using a novel data visualization dashboard for study planning and trial recruitment, and surveillance and cancer care delivery research. The expertise of C-POD’s staff and their experience with using numerous large data sources make the team uniquely positioned to collect, organize, and disseminate cancer-related data with UWCCC researchers.