Institute of Translational Health Sciences
Institute of Translational Health Sciences
批准号:
10731707
负责人:
Mary L. Disis
金额:
$16.81万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2017
资助国家:
美国
项目状态:
未结题
起止时间:
2017-06-01 至 2027-02-28
关键词:
AdministratorAdolescent and Young AdultAmerican College of Obstetricians and GynecologistsAreaAwardBirthBisexualCaringChildbirthClinicClinicalClinical ResearchCommunitiesConsciousContinuity of Patient CareDataDevelopmentDisparity populationEnsureEquityFocus GroupsFutureGoalsGroupingHealthHealthcareHealthcare SystemsHeterosexualityHeterosexualsInequityInstitutionInterviewJusticeK-Series Research Career ProgramsKnowledgeLeftLesbianLiteratureMaternal HealthMaternal Health ServicesMaternal MortalityMaternal health equityMedicalMedical StaffMental HealthMethodsOutcomePerceptionPerinatalPerinatal CarePopulation InterventionPregnancyPregnancy RatePrenatal careProviderQualitative MethodsRecommendationReportingResearchResourcesRoleService delivery modelShapesSterile coveringsStructureTranslational ResearchUnderrepresented PopulationsUnited StatesWomanWorkadverse birth outcomescare preferencecare providerscare systemschild bearingclinical careclinical practicecommunity engagementcommunity organizationsethnic identityevidence baseexpectationexperiencehealth care disparityhealth disparityhealth equityhealth inequalitiesimprovedinnovationintervention deliverylensmaternal morbiditypeople of colorperceived discriminationperinatal healthphysical conditioningpreferencepreventracial identityracismreproductivesexual identitysexual minority womenskillstranslation factortranslational health sciencewomen of color
中文摘要
I.有色人种双性恋妇女围产期保健的质性研究
经验
有色人种妇女(WOC)和性少数群体妇女(SMW)在孕产方面都经历了惊人的不平等。
美国的健康和医疗保健。最值得注意的是,双性恋女性的怀孕率最高
在法定最低工资中,双性恋青少年及青年人的生育率显著高于
他们的异性恋伴侣然而,孕产妇健康研究通常将双性恋妇女
与女同性恋者和假设异性恋之间的WOC,尽管独特的健康和医疗保健
双性恋妇女组织面临的差异。这些不精确的分组在孕产妇保健的交叉点,
WOC和SMW在孕产妇健康研究中模糊了双性恋WOC的围产期健康需求,
临床实践适当的围产期护理对于优化孕产妇和分娩结果至关重要,但孕产妇
健康研究已经检查了双性恋WOC的围产期保健经验。迫切需要参与
在转化健康研究中的双性恋WOC,以了解他们的围产期保健需求并确定差距
致力于为这一人群制定有效的孕产妇保健干预措施。本申请建议
开发社区驱动的方法,使双性恋WOC参与转化健康研究。使用
质的方法,本研究的次要目标是:1)提高对生活的理解
采用交叉生殖公正透镜,在双性恋WOC中进行围产期保健的经验,以及
2)确定改善双性恋妇女卵巢癌围产期护理的建议。社区指导委员会
(n=10),由大多数双性恋WOC组成,将在整个研究期间定期召开会议,
公平和肯定的战略,使双性恋妇女在转化健康研究。面试将
与双性恋WOC(n=31)进行,以确定他们的偏好,需求和经验,而他们是
寻求和利用围产期护理。最后,将与围产期提供者和医疗保健提供者举行三个重点小组会议。
工作人员、助产士和医疗保健管理人员(n=24),以表征医疗保健系统的看法,
对双性恋WOC的围产期护理的观点,并确定改善围产期护理的建议
实践这项研究将解决我们目前对双性恋WOC的理解中的关键知识缺口
围产期接触,遵循循证社区参与(CE)方法,并通过
生殖正义的创新透镜。为吸引双性恋WOC参与研究而开发的新策略
将适用于其他临床领域,作为更广泛的科学界的宝贵资源。的
拟议的研究还有望为未来有效的临床干预和护理提供信息
分娩模式,以改善孕产妇和生育结果的双性恋妇女和其他历史上
从长远来看,这将有助于弱势群体,从而促进所有人的孕产妇保健公平。并辅之以有效的
为期两年的多样性补充,候选人将进一步发展她的翻译健康研究技能,
准备她提交K应用程序的基础上,从这个奖项的结果,以支持她在实现她的
长期研究目标。
英文摘要
I. Project Summary: A Qualitative Study of Bisexual Women of Color's Perinatal HealthCare
Experiences
Both women of color (WOC) and sexual minority women (SMW) experience striking inequities in maternal
health and healthcare in the United States. Most notably, bisexual women have the highest rates of pregnancy
among SMW, while childbearing rates in bisexual adolescents and young adults significantly exceed that of
their heterosexual counterparts. However, maternal health research commonly aggregates bisexual women
with lesbians and assumes heterosexuality among WOC, despite the distinctive health and healthcare
disparities faced by bisexual WOC. These imprecise groupings at the intersection of maternal healthcare for
WOC and SMW obscure the perinatal health needs of bisexual WOC within maternal health research and
clinical practice. Adequate perinatal care is crucial for optimizing maternal and birth outcomes, yet no maternal
health studies have examined the perinatal healthcare experiences of bisexual WOC. It is urgent to engage
bisexual WOC in translational health research to understand their perinatal healthcare needs and identify gaps
in care to develop effective maternal health interventions for this population. This application proposes to
develop community-driven approaches to engaging bisexual WOC in translational health research. Using
qualitative methods, the secondary goals of this proposed study are to: 1) improve the understanding of lived
experiences with perinatal healthcare in bisexual WOC using an intersectional, reproductive justice lens, and
2) identify recommendations for improving perinatal care for bisexual WOC. A community steering committee
(n=10), comprised of a majority of bisexual WOC, will regularly convene throughout the study to develop
equitable and affirming strategies for engaging bisexual WOC in translational health research. Interviews will
be conducted with bisexual WOC (n=31) to identify their preferences, needs, and experiences while they are
seeking and utilizing perinatal care. Finally, three focus groups will be held with perinatal providers and medical
staff, birth workers, and healthcare administrators (n=24) to characterize healthcare system perceptions and
perspectives on perinatal care for bisexual WOC and identify recommendations for improving perinatal care
practices. This study will address key knowledge gaps in our current understanding of bisexual WOC's
perinatal encounters, following evidenced-based community engagement (CE) methods and through the
innovative lens of reproductive justice. The new strategies developed for engaging bisexual WOC in research
will be adaptable to other clinical areas, serving as a valuable resource for the wider scientific community. The
proposed study is also expected to inform the future development of effective clinical interventions and care
delivery models to improve maternal and birth outcomes for bisexual WOC and other historically
disadvantaged populations in the long term, thus advancing maternal health equity for all. With the support of a
two-year Diversity Supplement, the candidate will further develop her translational health research skills,
preparing her to submit a K application based on the findings from this award to support her in attaining her
long-term research goals.
期刊论文(0)
专著(0)
科研奖励(0)
会议论文
Developing Community-Responsive mHealth and AI/ML: Understanding Perspectives of Hispanic Community Members in Washington State
-
批准号:10598360
-
项目类别:
-
资助金额:$30.42万
-
财政年份:2022
-
负责人:Mary L. Disis
-
依托单位:
Institute of Translational Health Sciences
-
批准号:10595094
-
项目类别:
-
资助金额:$1051.44万
-
财政年份:2017
-
负责人:Mary L. Disis
-
依托单位:
Institute of Translational Health Sciences
-
批准号:10524284
-
项目类别:
-
资助金额:$1048.91万
-
财政年份:2017
-
负责人:Mary L. Disis
-
依托单位:
Institute of Translational Health Sciences
-
批准号:10838269
-
项目类别:
-
资助金额:$15.32万
-
财政年份:2017
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR AIDS RESEARCH
-
批准号:8365202
-
项目类别:
-
资助金额:$50.66万
-
财政年份:2011
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR PEDIATRIC CLINICAL TRIALS
-
批准号:8365201
-
项目类别:
-
资助金额:$48.0万
-
财政年份:2011
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR AIDS RESEARCH
-
批准号:8365198
-
项目类别:
-
资助金额:$50.66万
-
财政年份:2011
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR CLINICAL TRIALS
-
批准号:8365200
-
项目类别:
-
资助金额:$287.98万
-
财政年份:2011
-
负责人:Mary L. Disis
-
依托单位:
Vaccinating against IGFBP-2 to prevent ovarian cancer relapse
-
批准号:8322539
-
项目类别:
-
资助金额:$43.77万
-
财政年份:2011
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR PEDIATRIC RESEARCH
-
批准号:8365199
-
项目类别:
-
资助金额:$575.96万
-
财政年份:2011
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR AIDS RESEARCH
-
批准号:8173846
-
项目类别:
-
资助金额:$129.05万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR PEDIATRIC RESEARCH
-
批准号:8173843
-
项目类别:
-
资助金额:$138.98万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR AIDS RESEARCH
-
批准号:8173842
-
项目类别:
-
资助金额:$129.05万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
Bastyr/UW Oncomycology Translational Research Center
-
批准号:8414893
-
项目类别:
-
资助金额:$14.2万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
Bastyr/UW Oncomycology Translational Research Center
-
批准号:8251308
-
项目类别:
-
资助金额:$13.49万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
Bastyr/UW Oncomycology Translational Research Center
-
批准号:8146214
-
项目类别:
-
资助金额:$110.62万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
Bastyr/UW Oncomycology Translational Research Center
-
批准号:8545524
-
项目类别:
-
资助金额:$30.08万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
Bastyr/UW Oncomycology Translational Research Center
-
批准号:8325455
-
项目类别:
-
资助金额:$120.76万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR CLINICAL TRIALS
-
批准号:8173844
-
项目类别:
-
资助金额:$585.68万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
CTSA INFRASTRUCTURE FOR PEDIATRIC CLINICAL TRIALS
-
批准号:8173845
-
项目类别:
-
资助金额:$52.8万
-
财政年份:2010
-
负责人:Mary L. Disis
-
依托单位:
海外基金