Coping Strategies in Parents of Children with a Chromoso

这项研究正在调查有罕见染色体异常的孩子的父母的应对策略。这些异常充满了极大的不确定性，父母在适应过程中必须应对这些不确定性。应对策略有两大类：以情绪为中心和以问题为中心。以情绪为中心的应对方式是试图改变一个人对压力源的感觉。先前的研究表明，当人们感觉自己对局势的控制力较弱，以及当他们感受到高度的不确定性时，他们会更频繁地使用以情绪为重点的应对策略。因此，我们假设，当父母感觉到存在更大的不确定性，并感觉到他们的可控性较低时，他们将更有可能使用以情绪为重点的应对策略。 为了评估这一假设，一项名为染色体删除外展的全国性支持组织的父母接受了一项调查。他们的孩子有各种各样的染色体异常。将对数据进行分析，以确定卫生保健提供者，特别是遗传咨询师的战略，以在高度不确定性和缺乏控制的情况下加强以情感为重点的应对。

This study is examining coping strategies of parents who have a child with a rare chromosome anomaly. These abnormalities are imbued with a great deal of uncertainty that parents must cope with in their adaptation. Two broad categories of coping strategies are emotion-focused and problem-focused. Emotion-focused coping centers on trying to change one's feelings about the stressor. Prior research suggests that people use emotion-focused coping strategies more often when they feel that they are less in control of the situation and when they experience a heightened sense of uncertainty. Accordingly, we hypothesize that when parents perceive there to be a greater level of uncertainty and perceive that they have a low degree of controllability, they will be more likely to use emotion-focused coping strategies. To evaluate this hypothesis, a survey has been administered to parents in a national support organization called the Chromosome Deletion Outreach. Their children have a wide variety of chromosome abnormalitites. Data will be analyzed to identify strategies for health care providers, particularly genetic counselors, to enhance emotion-focused coping in light of high degrees of uncertainty and lack of control.