NIDCD National Temporal Bone, Hearing and Balance Pathology Resource Registry

简介(由申请人提供)：拟推出一项综合计划，以促进人类颞骨捐献者的招募、捐献标本的收集和分发至活跃的实验室、利用人类耳科材料满足研究人员的特殊需要、为专业人员提供包括耳部病理学短期培训机会在内的教育工作，以及向公众和感兴趣的专业人士(包括科学家、器官采购专家和承办人)提供教育推广服务。这将通过建立和维护一个协调的临时骨登记办公室来实现。拟议的登记处职能将由小约瑟夫·B·纳多尔医学博士和查尔斯·利伯曼博士(共同首席调查员)监督。将协助监督登记处活动的协查人员将包括一份在促进人类颞骨组织病理学方面具有经验和专业兴趣的个人名单。这些人将包括迈克尔·J·麦肯纳医学博士、史蒂文·D·劳赫医学博士、乔·C·亚当斯博士、艾丽西亚·奎斯内尔医学博士和菲利佩·桑托斯医学博士。NIDCD登记处方案协调员将提供额外的监督，他将帮助选择一个指导委员会，包括登记处的PI、项目协调员和2至3名了解和欣赏耳科病理学和基础耳科研究价值的外部科学家。

DESCRIPTION (provided by applicant): A comprehensive program is proposed to facilitate recruitment of human temporal bone donors, accrual and distribution of donated specimens to active laboratories, brokering of special needs of research investigators using human otologic material, educational efforts including short-term training opportunities in Otopathology for the profession and providing educational outreach to the public and interested professionals including scientists and organ procurement specialists and undertakers. This will be accomplished through the development and maintenance of a coordinated Temporal Bone Registry Office. The proposed Registry function will be overseen by Joseph B. Nadol, Jr., M.D. and M. Charles Liberman, Ph.D., (Co-Principal Investigators). Co- Investigators who will help to supervise the activities of the Registry will include a list of individuals with experience and professional interest in furtherance of human temporal bone histopathology. These will include Michael J. McKenna, MD, Steven D. Rauch, MD, Joe C. Adams, Ph.D., Alicia Quesnel, MD, and Felipe Santos, MD. Additional oversight will provided by the NIDCD Program Coordinator for the Registry who will help in the selection of a Steering Committee including the PI of the Registry, the Project Coordinator and 2 to 3 external scientists with an understanding and appreciation of the value of otopathology and basic otologic research.