CRII:SCH: Parent-2-Parent: Supporting Dyadic Caregiving Coordination in the Hospital

CRII:SC​​H：家长-2-家长：支持医院的二元护理协调

• 批准号: 1850273
• 负责人: Andrew Miller
• 金额: $ 17.48万
• 依托单位: Indiana University
• 依托单位国家: 美国
• 项目类别: Standard Grant
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-06-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://www.nsf.gov/awardsearch/showAward?AWD_ID=1850273&HistoricalAwards=false
• 关键词: CRII; SCH; Parent; Supporting; Dyadic

When a child is hospitalized, existing support networks spring into action. In this unanticipated, stressful situation, parents must quickly absorb complicated clinical information and take on new caregiving tasks, without abandoning other responsibilities. Furthermore, within-family communication and coping strategies of the parents, or dyad, are significant predictors of post-hospitalization health outcomes. Human-Computer Interaction and Computer-Supported Cooperative Work researchers are actively studying how technology can support coordination between children and their care team, and between parents and children. However, little research has focused on how technology can support and augment the parenting dyad during hospitalization. Current technologies are not optimized for these contexts, and may even compound family stress if not carefully designed and implemented.The long-term goal of this project is to establish fundamental design strategies for social computing that enable effective dyadic caregiving coordination in unanticipated, stressful situations, such as the hospitalization of one's child, and show how those technologies could support decision-making and information sharing amid high degrees of uncertainty. The specific objective of this proposal is to identify and demonstrate how social technologies can support and augment the ability of parenting dyads to effectively communicate and coordinate during hospitalization. Through a combination of rigorous qualitative investigations, parent-driven design sessions, and hospital-based pilot technology deployments, the investigator will address two specific aims: 1) Characterize current communication and coordination practices within parenting dyads, and 2) Envision, demonstrate, and verify dyadic caregiving support technologies. This work will be grounded in the case of pediatric cancer, the leading cause of disease-related deaths in youth. However, the proposed work has implications for dyadic caregiving in diverse healthcare contexts.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.

当一个孩子住院时，现有的支持网络立即采取行动。在这种意料之外的紧张情况下，父母必须迅速吸收复杂的临床信息，并承担新的任务，而不放弃其他责任。此外，家庭内的沟通和应对策略的父母，或二分体，是显着的预测住院后的健康结果。人机交互和计算机支持的合作工作研究人员正在积极研究技术如何支持儿童与其护理团队之间以及父母与儿童之间的协调。然而，很少有研究关注技术如何在住院期间支持和增强父母二人组。目前的技术并没有针对这些情况进行优化，如果不仔细设计和实施，甚至可能会加剧家庭压力。该项目的长期目标是建立社会计算的基本设计策略，使有效的二元协调在意外的，紧张的情况下，如一个人的孩子住院，并展示这些技术如何在高度不确定的情况下支持决策和信息共享。本提案的具体目标是确定和展示社会技术如何支持和增强父母在住院期间有效沟通和协调的能力。 通过严格的定性调查，家长驱动的设计会议，并以医院为基础的试点技术部署相结合，研究者将解决两个具体目标：1）描述当前的沟通和协调的做法，在父母的二元，和2）设想，演示，并验证二元的支持技术。这项工作将以儿童癌症为基础，这是青年疾病相关死亡的主要原因。然而，拟议中的工作在不同的医疗保健contextuals.This奖项反映了NSF的法定使命，并已被认为是值得通过使用基金会的智力价值和更广泛的影响审查标准进行评估的支持。

项目成果

Designing for Families as Adaptive Systems: Collaborative Emotional Support and Resilience in the Children's Hospital

为家庭设计自适应系统：儿童医院的协作情感支持和复原力

• DOI: 10.1145/3491101.3519787
• 发表时间: 2022
• 期刊: CHI EA '22: Extended Abstracts of the 2022 CHI Conference on Human Factors in Computing
• 作者: Nikkhah, Sarah;Uday Rode, Akash;Kulkarni, Neha;Mittal, Priyanjali;Mueller, Emily;Miller, Andrew
• 通讯作者: Miller, Andrew

Sociotechnical Design Opportunities for Pervasive Family Sleep Technologies

普及家庭睡眠技术的社会技术设计机会

• DOI: 10.1145/3421937.3421979
• 发表时间: 2020
• 期刊: 14th EAI International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth ’20
• 作者: Cherenshchykova, Anna;Miller, Andrew D.
• 通讯作者: Miller, Andrew D.