Development of guideline to support empowerment of children who have been discharged from NICU and their families

制定指南以支持从新生儿重症监护病房出院的儿童及其家人的赋权

• 批准号: 16592169
• 负责人: SATO Mio
• 金额: $ 2.3万
• 依托单位: Kochi Women's University
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 2004
• 资助国家: 日本
• 起止时间: 2004 至 2006
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-16592169/
• 关键词: neonatal intensive care unit; family; empowerment; 新生児集中治療室(NICU); 低出生体重児

The present research contributes to the improvement of the present state of the child support system for children who have been discharged from NICU and their families, and aims for the healthy development of such children and the empowerment of families involved with their care.In the course of this study, it became clear that the difficulties faced by families begin with the hospitalization of their child and continue for years after that. These difficulties were related to the development of the child after being discharged from the hospital, specifically breast feeding, excretion, and weight gain among others. Medical examinations revealed confounding differences in the development of the affected children in comparison to other children, and it appeared that the former were more susceptible to developing infections of the respiratory tract. Furthermore, the families of the affected children were overwhelmed with their rearing, had insufficient sleep and rest and were anxious about … More the future of their child. The difficulties faced by the families changed depending on the development of their children and involved problems related to the delay in the development of their child as well as problems with rearing and entering kindergarten and school. Families also expressed concern that others might perceive their child as a burden on adulthood in the more distant future. There were also concerns regarding the effects on siblings supporting children who have been discharged from NICU. It became clear that families in such situations raise their children with the help of relatives and lead their lives day by day while attempting to maintain the integrity of the family.One of the obstacles faced by families raising children discharged from NICU is bias, and it was revealed in interviews that nurses are not involved in these family issues once the child has been discharged. Although nurses understand the difficulties faced by such families when preparing their children for entering kindergarten or school, it was found that they transfer the responsibility of taking care of such children to outpatient doctors or rely on the strength of the family itself, and thus they do not contribute to the empowerment of such families.This situation indicates that it is necessary for nurses to provide continuous support to children and their families at the clinic or locally even after the child has been discharged from NICU and to actively work towards a society that accepts such children. Less

本研究的目的在于改善NICU出院儿童及其家庭的抚养制度现状，促进NICU出院儿童的健康成长，提高家庭的能力。在研究过程中发现，家庭面临的困难开始是从孩子住院开始，并持续数年。这些困难与孩子出院后的发育有关，特别是母乳喂养、排泄和体重增加等。医疗检查显示，受影响儿童的发育与其他儿童相比存在令人混淆的差异，前者似乎更容易发生呼吸道感染。此外，受影响儿童的家庭养育他们的负担过重，睡眠和休息不足， ...更多信息 他们孩子的未来这些家庭面临的困难根据其子女的发育情况而变化，包括与其子女发育迟缓有关的问题以及抚养和进入幼儿园和学校的问题。家庭还表示担心，其他人可能会认为他们的孩子在更遥远的未来是成年人的负担。还有人担心对从新生儿重症监护病房出院的子女的兄弟姐妹的影响。很明显，在这种情况下，家庭在亲戚的帮助下抚养孩子，并在努力保持家庭完整的同时日复一日地生活。抚养从NICU出院的孩子的家庭面临的障碍之一是偏见，在采访中透露，一旦孩子出院，护士就不会参与这些家庭问题。尽管护士理解这些家庭在为孩子进入幼儿园或学校做准备时所面临的困难，但发现他们将照顾这些孩子的责任转移给门诊医生或依靠家庭本身的力量，这种情况表明，护士有必要为儿童提供持续的支持，即使在儿童从新生儿重症监护病房出院后，也要在诊所或当地向其家人提供帮助，并积极努力建立一个接受这类儿童的社会。少