Effect of the program for mothers of children with Autism Spectrum Disorder to prevent impaired parenting and dysfunctional family processes

目的 本研究的目的是检验 Skip-Mamma 计划对自闭症谱系障碍 (ASD) 儿童的母亲的影响，主要是在生活质量方面。 方法 进行了一项干预研究。 Skip-Mamma 计划旨在提高母亲养育孩子的生活技能，并恢复和治愈她的身心。使用世界卫生组织QOL-26（QOL-26）、育儿压力指数-简表（PSI-SF）和家庭评估量表（FAI）在项目期间的3个时间点评估干预效果：第一次会议前、项目开始3个月和项目结束后（6个月）。使用SPSS 13. 0J软件通过Wilcoxon检验分析数据。本次调查的参与者包括 25 名母亲和 27 名儿童{83。 2±33。 6、42-150（平均值±标准差，范围）个月}患有自闭症谱系障碍。各问卷均有轻微正向转变，但无显着变化（表1）。结果分为QOL上升型组、下降型组或V型组。我们发现参与者对自己和家人的了解增加是一个重要方面，V形图案预计会提前出现。对于完成该计划的参与者，我们定期举行后续会议，以确定他们的生活质量是否保持不变或有所改善。我们将这次后续活动称为“Skip-Salon”，本次沙龙是在完成Skip-Mamma计划的参与者的要求和希望的基础上开始的。 结论 结果表明，Skip-Mamma计划对许多母亲的福祉有益，同时也关注个人和家庭背景，因为这对于提供更好的护理很重要。

Aim The purpose of this study was to examine the effects, mostly in QOL, of the Skip-Mamma program for mothers of children with ASD.Methods An intervention study was conducted. The Skip-Mamma program was designed to promote a mother's life-skills for childrearing and to refresh and heal her mind and body. Interventional effects were assessed using World Health Organization QOL-26(QOL-26), Parenting Stress Index-Short Form(PSI-SF) and Family Assessment Inventory(FAI) at 3 time points during the program as follows : before the first session, at 3 months into the program, and after the program ended(6 months). Data were analysed by the Wilcoxon test using SPSS 13. 0J software. The participants in this survey include 25 mothers and of 27 children{83. 2±33. 6, 42-150(Mean±SD, Range) months old} with ASD. There is a mild positive transition for every questionnaire, but there is no significant change(Table 1).Result There were classified into the QOL rising pattern group, descending pattern group or V-shaped pattern group. We found that the participants' increased understanding of themselves and their family is an important aspect, and the V-shaped pattern was expected to come out beforehand to be taken. For participants who completed the program, we held regular follow-up sessions to determine whether their QOL remained the same or showed improvement. We call this follow-up session a"Skip-Salon", and this salon started from request and hope by participants who complete the Skip-Mamma program.Conclusion The results suggest that the Skip-Mamma program is useful to the well-being of many mothers', and also pay attention to an individual's and family background as it is important for providing better care.