Archiving and Documenting Child Health and Human Development Data Sets

归档和记录儿童健康和人类发展数据集

• 批准号: 9543523
• 负责人: William G. Axinn
• 金额: $ 7.8万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-01 至 2019-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9543523
• 关键词: American; Anemia; Archives; Award; Behavior; Behavioral; Behavioral Sciences; Blood; British; Cessation of life; Child; Child Health; Communities; Contraceptive Usage; DNA; Data; Data Analyses; Data Files; Data Quality; Data Set; Demography; Ecosystem; Europe; Evaluation; Family; Family Study; Family member; Fertility; General Population; Habitats; Health; Health Sciences; Household; Human; Human Development; Individual; International; Investments; Journals; Learning; Life Cycle Stages; Link; Longitudinal Studies; Marriage; Measures; Modeling; National Institute of Child Health and Human Development; Nepal; Nomads; Online Systems; Paper; Peer Review; Personal Satisfaction; Population; Population Sciences; Public Policy; Publishing; Reporting; Research; Resources; Saliva; Sampling; Scientific Advances and Accomplishments; Scientist; Series; Services; Social Sciences; Sociology; Source; Speed; Spouses; Surveys; Testing; Time; Western Europe; Work; base; comparative; data resource; data sharing; design; discrete time; environmental change; experience; gene environment interaction; hazard; improved; innovation; intergenerational; land cover; land use; migration; panel study of income dynamics; population health; programs; response; screening; social; study population; support tools; tool; usability; web site

The creation of large scientific studies of human behavior and social experience in the general popula- tion constitutes an enormous scientific investment – the high value of such studies creates a high scientific pri- ority on dissemination tools that significantly expand the scientific use of such data. To date the limitation of dissemination efforts to data on the U.S. population greatly restricts the ability to test the external validity of key findings, raising the possibility that even within the U.S. population findings from any particular study population may not apply to other important populations. Dissemination of similar data resources from populations living under circumstances quite different from the U.S. and Western Europe are urgently needed so that social and behavioral scientists can quickly and easily test the breadth of external validity of key findings. We will take advantage of NICHD's long-term investment in the Chitwan Valley Family Study (CVFS) in Nepal to achieve this high priority objective. Built from more than a dozen different awards from NICHD over 20 years, the CVFS is a very valuable data resource from outside the U.S. in social and health sciences. Harnessing this R03 program for “archiving and documenting of existing data sets in population science”, we will implement a series of data improvements and new dissemination and data-user support tools to dramati- cally enhance the availability and usability of the CVFS data. The CVFS is an excellent comparative data re- source, featuring a 20-year panel study from Nepal with many important features. First, CVFS was specifically designed to replicate design features from the best longitudinal studies in the U.S. and Europe, such as the Panel Study of Income Dynamics (PSID). Second, it was designed to measure dynamics of change over time in the community level, not just the individual and household levels. Third, the CVFS measures environmental changes over time, including changes in land use/land cover, habitat quality, and eco-system. Fourth, the CVFS follows all migrants (both individuals and households) no matter where they move and periodically re- freshes the sample with in-migrants. Finally, CVFS now has saliva based DNA samples from all family mem- bers and blood based anemia screening for all children. As a result the CVFS is an unparalleled resource for study change over time in contraceptive use and non-use, health across the life course, and gene by environ- ment interactions. We will transform access to this special resource with changes focused on use of the CVFS data, measures specially designed to facilitate comparisons, construction of new data files to speed data linking and data analysis, construction of new learning tools, and new web-based analysis tools. The activities are specifically designed to improve the transparency of comparability between CVFS and data from other settings to assist scientists making these comparisons. We will also improve data quality and user experience so the complexity of these multi-level, 20-year, multi-topic data is not an obstacle to data use.

对人类行为和社会经验进行大规模科学研究 化构成了一项巨大的科学投资——此类研究的高价值创造了高科学价值 传播工具的重要性，可显着扩大此类数据的科学用途。迄今为止，限制 对美国人口数据的传播工作极大地限制了测试关键数据外部有效性的能力 研究结果表明，即使在美国人口中，任何特定研究人群的研究结果也有可能 可能不适用于其他重要人群。传播来自居住人口的类似数据资源 在与美国和西欧截然不同的情况下，迫切需要使社会和 行为科学家可以快速、轻松地测试关键发现的外部有效性的广度。 我们将利用 NICHD 对奇旺谷家庭研究 (CVFS) 的长期投资 尼泊尔实现这一高度优先目标。荣获 NICHD 十多个不同奖项 20 多年来，CVFS 是美国以外社会和健康科学领域非常有价值的数据资源。 利用 R03 计划“归档和记录人口科学中的现有数据集”，我们 将实施一系列数据改进和新的传播和数据用户支持工具，以戏剧化 显着增强 CVFS 数据的可用性和可用性。 CVFS 是一个优秀的比较数据重新 来源，以尼泊尔 20 年的小组研究为特色，具有许多重要特征。首先，CVFS具体是 旨在复制美国和欧洲最佳纵向研究的设计特征，例如 收入动态小组研究（PSID）。其次，它旨在衡量随时间变化的动态 在社区层面，而不仅仅是个人和家庭层面。三、CVFS 措施环境 随着时间的推移而发生的变化，包括土地利用/土地覆盖、栖息地质量和生态系统的变化。第四， CVFS 跟踪所有移民（个人和家庭），无论他们移居何处，并定期重新评估 使样本与移民保持新鲜。最后，CVFS 现在拥有来自所有家庭成员的唾液 DNA 样本 对所有儿童进行血清和血液贫血筛查。因此，CVFS 是无与伦比的资源 研究避孕药具的使用和不使用、整个生命过程中的健康状况以及环境因素随时间的变化。 心理互动。 我们将通过重点关注 CVFS 数据的使用来改变对这一特殊资源的访问， 专门为促进比较、构建新数据文件以加速数据链接而设计的措施 和数据分析，构建新的学习工具以及新的基于网络的分析工具。活动有 专门设计用于提高 CVFS 与其他设置数据之间可比性的透明度 帮助科学家进行这些比较。我们还将提高数据质量和用户体验，以便 这些多层次、20年、多主题数据的复杂性并不成为数据使用的障碍。