Archiving and Documenting Child Health and Human Development Data Sets

归档和记录儿童健康和人类发展数据集

• 批准号: 9543523
• 负责人: William G. Axinn
• 金额: $ 7.8万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-01 至 2019-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9543523
• 关键词: American; Anemia; Archives; Award; Behavior; Behavioral; Behavioral Sciences; Blood; British; Cessation of life; Child; Child Health; Communities; Contraceptive Usage; DNA; Data; Data Analyses; Data Files; Data Quality; Data Set; Demography; Ecosystem; Europe; Evaluation; Family; Family Study; Family member; Fertility; General Population; Habitats; Health; Health Sciences; Household; Human; Human Development; Individual; International; Investments; Journals; Learning; Life Cycle Stages; Link; Longitudinal Studies; Marriage; Measures; Modeling; National Institute of Child Health and Human Development; Nepal; Nomads; Online Systems; Paper; Peer Review; Personal Satisfaction; Population; Population Sciences; Public Policy; Publishing; Reporting; Research; Resources; Saliva; Sampling; Scientific Advances and Accomplishments; Scientist; Series; Services; Social Sciences; Sociology; Source; Speed; Spouses; Surveys; Testing; Time; Western Europe; Work; base; comparative; data resource; data sharing; design; discrete time; environmental change; experience; gene environment interaction; hazard; improved; innovation; intergenerational; land cover; land use; migration; panel study of income dynamics; population health; programs; response; screening; social; study population; support tools; tool; usability; web site

The creation of large scientific studies of human behavior and social experience in the general popula- tion constitutes an enormous scientific investment – the high value of such studies creates a high scientific pri- ority on dissemination tools that significantly expand the scientific use of such data. To date the limitation of dissemination efforts to data on the U.S. population greatly restricts the ability to test the external validity of key findings, raising the possibility that even within the U.S. population findings from any particular study population may not apply to other important populations. Dissemination of similar data resources from populations living under circumstances quite different from the U.S. and Western Europe are urgently needed so that social and behavioral scientists can quickly and easily test the breadth of external validity of key findings. We will take advantage of NICHD's long-term investment in the Chitwan Valley Family Study (CVFS) in Nepal to achieve this high priority objective. Built from more than a dozen different awards from NICHD over 20 years, the CVFS is a very valuable data resource from outside the U.S. in social and health sciences. Harnessing this R03 program for “archiving and documenting of existing data sets in population science”, we will implement a series of data improvements and new dissemination and data-user support tools to dramati- cally enhance the availability and usability of the CVFS data. The CVFS is an excellent comparative data re- source, featuring a 20-year panel study from Nepal with many important features. First, CVFS was specifically designed to replicate design features from the best longitudinal studies in the U.S. and Europe, such as the Panel Study of Income Dynamics (PSID). Second, it was designed to measure dynamics of change over time in the community level, not just the individual and household levels. Third, the CVFS measures environmental changes over time, including changes in land use/land cover, habitat quality, and eco-system. Fourth, the CVFS follows all migrants (both individuals and households) no matter where they move and periodically re- freshes the sample with in-migrants. Finally, CVFS now has saliva based DNA samples from all family mem- bers and blood based anemia screening for all children. As a result the CVFS is an unparalleled resource for study change over time in contraceptive use and non-use, health across the life course, and gene by environ- ment interactions. We will transform access to this special resource with changes focused on use of the CVFS data, measures specially designed to facilitate comparisons, construction of new data files to speed data linking and data analysis, construction of new learning tools, and new web-based analysis tools. The activities are specifically designed to improve the transparency of comparability between CVFS and data from other settings to assist scientists making these comparisons. We will also improve data quality and user experience so the complexity of these multi-level, 20-year, multi-topic data is not an obstacle to data use.

对普通大众的人类行为和社会经验进行大型科学研究的创造- 这是一项巨大的科学投资，这些研究的高价值创造了高科学价值， 优先考虑传播工具，大大扩大这些数据的科学用途。到目前为止， 对美国人口数据的传播工作极大地限制了测试关键数据外部有效性的能力。 研究结果，提高了即使在美国人口中，来自任何特定研究人群的研究结果 可能不适用于其他重要人群。传播来自生活在非洲的人口的类似数据资源 在与美国和西欧完全不同的情况下，迫切需要社会和 行为科学家可以快速而容易地测试关键发现的外部有效性的广度。 我们将利用NICHD在Chitwan Valley Family Study（CVFS）中的长期投资， 尼泊尔努力实现这一高度优先目标。由NICHD的十几个不同奖项组成 20多年来，CVFS是美国以外社会和健康科学领域非常有价值的数据资源。 利用这个R 03程序“人口科学现有数据集的存档和记录”，我们 将实施一系列数据改进和新的传播和数据用户支持工具， 大大增强CVFS数据的可用性和可用性。CVFS是一个很好的比较数据， 资料来源，介绍了尼泊尔20年的小组研究，其中有许多重要特征。首先，CVFS专门 旨在复制美国和欧洲最好的纵向研究的设计特征，例如 收入动态小组研究（PSID）。其次，它旨在衡量随着时间的推移而发生的变化 在社区层面，而不仅仅是个人和家庭层面。第三，CVFS测量环境 随着时间的推移而发生的变化，包括土地利用/土地覆盖、生境质量和生态系统的变化。四是 CVFS跟踪所有移民（包括个人和家庭），无论他们搬到哪里，并定期重新 用新移民的样本来更新样本最后，CVFS现在有来自所有家庭成员的唾液DNA样本- 对所有儿童进行bers和基于血液的贫血筛查。因此，CVFS是一个无与伦比的资源， 研究使用和不使用避孕药具、整个生命过程中的健康状况以及环境基因随时间的变化， 的互动。 我们将改变对这一特殊资源的访问方式，重点是CVFS数据的使用， 为便于比较而专门设计的措施，建立新的数据档案以加快数据连接 和数据分析，构建新的学习工具，以及新的基于网络的分析工具。这些活动 专门用于提高CVFS与其他环境数据之间可比性的透明度 来帮助科学家进行这些比较。我们还将提高数据质量和用户体验， 这些多层次、20年、多主题数据的复杂性并不妨碍数据的使用。