Effect of the program for mothers of children with Autism Spectrum Disorder to prevent impaired parenting and dysfunctional family processes

目的本研究的目的是检查Skip-Mamma项目对ASD患儿母亲的影响，主要是在生活质量方面。方法进行干预研究。“跳过妈妈”计划旨在提高母亲的生活技能，以养育孩子，并恢复和治愈她的身心。使用世界卫生组织QOL-26（QOL-26）、父母压力指数-短表（PSI-SF）和家庭评估量表（FAI）在项目期间的三个时间点评估干预效果：第一次会议前、项目开始3个月时和项目结束后（6个月）。数据分析采用SPSS 13进行Wilcoxon检验。0 j软件。参加这项调查的有25名母亲和27名儿童。2±33。6、42 ~ 150（Mean±SD, Range）月龄；每个问卷都有轻微的正向转变，但没有显著的变化（表1）。结果将患者的生活质量分为上升型组、下降型组和v型组。我们发现，参与者对自己和家庭的了解增加是一个重要的方面，并且预计v型模式会提前出现。对于完成项目的参与者，我们定期进行随访，以确定他们的生活质量是否保持不变或有所改善。我们将这次后续活动称为“跳跃沙龙”，这个沙龙是由完成跳跃妈妈项目的参与者的要求和希望开始的。结论“跳过妈妈”计划对许多母亲的健康有益，同时也要注意个人和家庭背景，因为它对提供更好的护理很重要。

Aim The purpose of this study was to examine the effects, mostly in QOL, of the Skip-Mamma program for mothers of children with ASD.Methods An intervention study was conducted. The Skip-Mamma program was designed to promote a mother's life-skills for childrearing and to refresh and heal her mind and body. Interventional effects were assessed using World Health Organization QOL-26(QOL-26), Parenting Stress Index-Short Form(PSI-SF) and Family Assessment Inventory(FAI) at 3 time points during the program as follows : before the first session, at 3 months into the program, and after the program ended(6 months). Data were analysed by the Wilcoxon test using SPSS 13. 0J software. The participants in this survey include 25 mothers and of 27 children{83. 2±33. 6, 42-150(Mean±SD, Range) months old} with ASD. There is a mild positive transition for every questionnaire, but there is no significant change(Table 1).Result There were classified into the QOL rising pattern group, descending pattern group or V-shaped pattern group. We found that the participants' increased understanding of themselves and their family is an important aspect, and the V-shaped pattern was expected to come out beforehand to be taken. For participants who completed the program, we held regular follow-up sessions to determine whether their QOL remained the same or showed improvement. We call this follow-up session a"Skip-Salon", and this salon started from request and hope by participants who complete the Skip-Mamma program.Conclusion The results suggest that the Skip-Mamma program is useful to the well-being of many mothers', and also pay attention to an individual's and family background as it is important for providing better care.