Building Research Infrastructure & Network in Chicago Chinatown

描述（由申请人提供）：在美国的中国人群中存在明显的健康差异，但我们对许多关键的健康问题有最基本的了解。此外，在中国人群中开展健康科学研究还面临着巨大的语言和文化挑战。此外，社区缺乏必要的技术基础设施，使华人社区能够建立研究能力，使社区能够就许多重要问题进行健康科学研究（即，心理健康、社会福利、癌症筛查、认知障碍、身体残疾、虐待老人、自我忽视等）。这些障碍需要进一步发展，为华人社区建立技术基础设施。在建立这一基础设施的过程中，双语和双文化的主要研究者（董博士和黄博士）和一个多学科团队旨在合作建立一个双语（英语和中文）数据资源中心，以加强社区参与的研究项目。双语数据资源中心将设在唐人街社区，并将有效地整合一个高度适应性的硬件和软件平台，以适应英语和汉语的定量和定性研究。此外，该平台将与拉什大学的双语编程，数据管理和统计团队进行有效协调。此外，该平台具有强大的潜力，可以减少调查研究中来回翻译的需求，并挑战在中国人群中开展健康科学研究的现有范式。这项提案的目的是建立在我们之前的合作基础上，基于社区参与式研究的原则，以语言/文化适当的方式扩大我们的伙伴关系，并建立必要的技术基础设施，以提高唐人街社区参与跨学科，疾病和条件的广泛健康科学研究的能力。此外，拉什大学坚定地致力于我们在华人社区的积极作用，调查团队将不懈地利用所有可用的资源，以确保这一基础设施的可持续性，所有这些都以改善健康和福祉，消除华人社区的健康差距为共同目标。

DESCRIPTION (provided by applicant): There are marked health disparities in the US Chinese population, yet we have the most rudimentary understanding of many critical health issues. In addition, there are vast linguistic and cultural challenges that confront health sciences research in Chinese population. Moreover, there has been a lack of community technological infrastructure necessary to empower the Chinese community to build research capacity to enable health science research on many important issues to the community (i.e., mental health, social wellbeing, cancer screening, cognitive impairment, physical disability, elder mistreatment, self-neglect, and etc). These impediments necessitate the further development to build technological infrastructure for the Chinese community. In building this infrastructure, bilingual and bicultural principal investigators (Drs. Dong and Wong) and a multidisciplinary team aim to collaboratively build a Bilingual (English and Chinese) Data Resource Center that will enhance community-engaged research projects. The Bilingual Data Resource Center will be based in the Chinatown community and will efficiently integrate a highly adaptive hardware and software platform to accommodate both quantitative and qualitative research in English and Chinese language. In addition, this platform will efficiently coordinate with the bilingual programming, data management and statistical team at Rush University. Moreover, this platform holds strong potential to mitigate the need for back-and-forth translation in survey research and to challenges the existing paradigm of how health sciences research are conducted in Chinese populations. The purpose of this proposal is to build on our prior collaborations based on the principles of community-based participatory research to expand our partnership in a linguistic/culturally appropriate way and to build technological infrastructure necessary to enhance Chinatown community¿s ability to participate in wide ranges of health sciences research across disciplines, disease, and conditions. Furthermore, Rush University is deeply committed to our active role in the Chinese community, and the investigative team will tirelessly leverage all available resources to ensure the sustainability of this infrastructure, all with the common goal of improving the health and wellbeing and eliminating health disparity in Chinese communities.