SouthEast Enrollment Center (SEEC)

过去十年的一些发展正在推动大胆的新项目，这些项目可以使 承诺精准或个性化的医疗。在DNA测序成本持续快速下降的同时， 重要的是电子健康记录(EHR)的广泛采用允许低成本、高度 安全地交换来自个人的大量纵向健康数据。此外，不断增长的消费者 移动和个人技术的采用提供了将基因组和健康数据与接触联系起来的机会， 行为和其他环境健康数据的规模是以前不可能的。我们必须确保 所有人都能享受到这些进步带来的好处。精准医学计划(PMI)成功的关键 队列计划将按比例纳入不同的群体。这是“东南”的一大强项 招生中心“(SEEC)联合体。SEEC将从佛罗里达州和佐治亚州招募1万人进入PMI， 其中包括大约3000名(30%)西班牙裔/拉丁裔志愿者和3200名(32%)黑人/非裔美国人志愿者。 重要的是，一半的拉美裔人将来自加勒比地区(例如古巴、波多黎各和多米尼加共和国)。 另一半来自南美洲和中美洲。我们的黑人样本将包括大约305名在外国出生的人 黑人主要来自海地和说英语的加勒比海岛屿。该联盟将由四人带头 佛罗里达州和佐治亚州领先的学术健康中心。每个成员都有相当多的记录 建立基因组队列，招募少数族裔参与临床研究，形成社区参与 伙伴关系，以及在大型网络之间共享医疗记录(例如，所有人都参与了PCORnet)。

A number of developments over the last decade are promoting bold new projects that can enable the promise of precision or personalized medicine. While DNA sequencing costs continue to drop rapidly, equally important has been the widespread adoption of electronic health records (EHR) allowing for the low cost, highly secure exchange of large amounts of longitudinal health data from individuals. In addition, the increasing consumer adoption of mobile and personal technologies offers the opportunity to link genomic and health data with exposure, behavioral and other environmental health data on a scale not previously possible. We must ensure that the benefits of these advances are accessible to all. Key to the success of the Precision Medicine Initiative (PMI) Cohort Program will be the proportional inclusion of diverse groups. This is a major strength of the “South-East Enrollment Center” (SEEC) consortium. SEEC will recruit 10,000 individuals from Florida and Georgia into PMI, including approximately 3,000 (30%) Hispanic/Latino and 3,200 (32%) Black/African American volunteers. Importantly, half of the Hispanics will come from the Caribbean (e.g. Cuba, Puerto Rico and the Dominican Republic) and the other half from South and Central America. Our sample of Blacks will include approximately 305 foreign-born blacks predominantly from Haiti and English speaking Caribbean islands. The Consortium will be spearheaded by four leading academic health centers in Florida and Georgia. Each member brings a considerable track record of establishing genomic cohorts, recruiting minorities into clinical research, forming community engagement partnerships, and sharing medical records across large networks (e.g. all participate in PCORnet).