Self-Management Technology for Asthmatic Teens (STAT)

描述(由申请人提供)：虽然哮喘引起的大多数不良后果可以通过适当的医疗护理和疾病管理来预防，但青少年继续面临不受控制的哮喘负面后果的高风险。导致哮喘的两个因素是：1)青少年未能将哮喘理解为一种慢性病，需要按计划服药，而不是对症状的周期性反应；2)当儿童过渡到青春期时，父母未能将责任和技能转移到有纪律的自我管理上。当决策和健康的责任从父母移交给他们的孩子时，青少年就有机会学习和练习必要的自我管理技能，以保持他们一生的健康。通过“哮喘青少年自我管理技术(STAT)”项目，State of Art，Inc.建议开发一种协调的多媒体资源，使用“青少年友好”、熟悉和广泛使用的基于视频、网络和移动电话的组件，为青少年提供自我管理哮喘所需的知识和工具。利用这些熟悉的互动技术，能够将关键的哮喘自我管理信息传递到青少年舒适、拥有和控制的领域。STAT材料将充分利用这些多重和互补的技术平台对青年固有的互动性和诱惑力的刺激。青少年将能够通过该资源的网站根据他们的喜好和具体需求定制这些互动工具，包括消息平台(电子邮件、短信/短信、即时消息)、提醒消息的频率以及所需的信息类型和自我管理工具。这一资源致力于加强哮喘控制，帮助青少年对自己的健康负责，并学会使用他们熟悉和熟悉的技术自我管理哮喘。为了实现这一长期目标，STAT资源旨在增加12-17岁青少年的自我管理实践，提高生活质量，减少与哮喘相关的症状和严重程度。在第一阶段，最先进的公司将与从事青少年健康、哮喘和呼吸系统疾病以及青少年和父母工作的多学科专业人员一起进行研究。这项研究将被用来a)概念化资源的结构和内容，b)开发“青少年友好”的样本信息和深入的材料计划，以及c)检查这些信息和提议的特征的可行性和有效性。首先，将对专业人员、青少年和家长进行关键信息提供人的访谈，以1)检查从研究和社区工作中吸取的教训，2)确定哪些研究和干预最佳实践可以应用于STAT，3)了解父母帮助青少年管理他们哮喘的当前经验，4)了解青少年目前管理自己哮喘的经验，以及5)了解目前正在使用哪些资源来帮助青少年哮喘自我管理。将根据从这些不同文化背景的关键线人访谈和顾问指导中获得的知识，制定材料(概念和创意计划)的样本信息和深入计划。一旦制定了这些计划，青少年焦点小组将帮助确保计划的材料和信息符合目标受众及其照顾者的价值观和需求。小组将由训练有素的主持人使用标准的焦点小组方法进行，并将在小组之间进行跨小组比较。将在提交第二阶段申请之前修订概念和创造性计划，纳入各重点小组的建议，该申请将概述全面统计数据资源的开发和评价情况。与公共卫生相关：哮喘是美国更普遍、成本更高的慢性儿童疾病之一，也是导致儿童残疾的主要原因。它也是一种疾病，通过有纪律地和适当地使用已被证明有效的药物是可以控制的。在孩提时代，父母提供了很大一部分疾病管理纪律。在青春期，随着孩子在父母的监督下花费更少的时间，哮喘的管理从父母过渡到他们受影响的孩子。许多青少年对这种转变没有做好准备，给青少年和他们的家庭带来了巨大的负担，限制了他们睡觉、学习和完成其他事业的能力。自我管理不善还可能需要使用复杂和昂贵的紧急医疗方法，从而导致因缺课和工作日而造成的其他不必要的直接和间接成本。虽然许多与哮喘相关的问题可以通过控制和自我管理策略来避免，但对这些技术的依从率很低，特别是在青少年中。通过赋予青少年自我管理和控制哮喘的能力，“哮喘青少年自我管理技术(STAT)”研究和资源有可能帮助青少年对自己的健康负责，防止潜在危及生命的哮喘相关后果；从而降低哮喘的严重程度、相关的共病和一生中的相关医疗成本。

DESCRIPTION (provided by applicant): Although most adverse outcomes due to asthma can be prevented through appropriate medical care and disease management, adolescents continue to be at high risk for negative consequences of uncontrolled asthma. Two contributing factors are 1) Failure of adolescents to understand Asthma as a chronic illness requiring scheduled medication rather than episodic responses to symptoms; 2) Failure of parents to transfer responsibility and skills for disciplined self-management when children transition into adolescence. When responsibility for decision-making and health is being turned over from parents to their children, adolescents have an opportunity to learn and practice the self-management skills necessary to maintain their health throughout their lifetime. Through the "Self-Management Technology for Asthmatic Teens (STAT)" project, State of the Art, Inc. proposes the development of a coordinated multimedia resource that uses "teen friendly", familiar and widely accessible video-, web-, and mobile phone-based components to provide adolescents with the knowledge and tools necessary to self-manage their asthma. Utilizing these familiar, interactive technologies enables delivery of a critical asthma self-management message into a realm of adolescent comfort, ownership and control. STAT materials will take full advantage of the stimulus of interactivity inherent and alluring to youth in these multiple and complementary technological platforms. Adolescents will be able to tailor these interactive tools to their preferences and specific needs through the resource's website, including message platform (email, SMS/text messaging, instant messaging), frequency of reminder messages, and types of information and self-management tools needed. This resource strives to increase asthma control by helping adolescents take responsibility for their health and learn to self-manage their asthma employing technologies with which they are familiar and comfortable. To accomplish this long- term objective, the STAT resource aims to increase self-management practices, improve quality of life, and decrease asthma-related symptoms and severity among adolescents ages 12-17. In Phase I, State of the Art, Inc. will conduct research with multidisciplinary professionals who work in adolescent health and asthma and respiratory conditions as well as with adolescents and parents. This research will be used to a) conceptualize the structure and content of the resource, b) develop "teen friendly" sample messages and in-depth plans for materials, and c) examine the feasibility and validity of these messages and proposed features. Initially, key informant interviews with professionals, adolescents, and parents will be conducted to 1) examine the lessons learned from research- and community-based efforts, 2) determine what practical applications of research and intervention best practices can be applied to STAT, 3) learn about parents' current experience of helping an adolescent manage their asthma, 4) learn about adolescents' current experience in managing their own asthma, and 5) learn what current resources are being used to aid in adolescent asthma self-management. Sample messages and in-depth plans for materials (concept and creative plans) will be developed based on the knowledge gained from these culturally diverse key informant interviews and from advisor guidance. Once these plans are developed, focus groups with adolescents will help ensure that the planned materials and messages match the values and needs of the target audience and their caregivers. Groups will be conducted by trained moderators using standard focus group methods and cross-group comparisons will be made among groups. Concept and creative plans will be revised incorporating recommendations from the focus groups prior to submission of a Phase II application that will outline the development and evaluation of the full-scale STAT resource. Public Health Relevance: Asthma is one of the more pervasive and costly chronic childhood diseases in the United States and a major cause of childhood disability. It is also a disease that is manageable with disciplined and proper use of medications of proven efficacy. In childhood, parents provide much of this disease management discipline. In adolescence, as children spend less time under their parents' supervision, management of asthma transitions from parents to their affected children. Many adolescents are unprepared for this shift, placing a huge burden on both adolescents and their families; limiting their abilities to sleep, learn, and accomplish other undertakings. Poor self-management also may require the use of complex and expensive emergency medical treatments that result in other unnecessary direct and indirect costs from missed school and work days. While many asthma-related problems could be averted through control and self-management strategies, low rates of adherence to these techniques is common, especially among adolescents. By empowering adolescents to self- manage and control their asthma, "Self-Management Technology for Asthmatic Teens (STAT)" research and resources have the potential to help adolescents take responsibility for their health and prevent potentially life- threatening asthma-related outcomes; thereby reducing the severity of asthma, related comorbidities, and associated healthcare costs throughout their lives.