New Jersey Minority Aging Collaborative

摘要 根据PAR-18-749(R24)建立协作团队以改进方法和成果 研究参与者招募和保留，我们提出了新泽西州少数民族老龄化合作 (NJMAC)改善研究招募和保留，并从文化和语言上支持 适合非裔美国人、西班牙裔和亚洲老年人及其家人的研究。而新泽西州的排名 作为按人均收入计算第二富有的州和在全国总体健康状况最好的州，有一个 考虑其他人口健康排名的悖论--新泽西州是差距最大的州之一 健康状况(第46位)。对于新泽西州的老年人来说，在健康和健康方面也存在同样大的差距 幸福感，特别是少数族裔老年人的幸福感，由于缺乏对生物医学的参与而加剧 和社会研究。此外，还没有充分整合必要的社区支持 使新泽西州的少数民族社区能够充分参与生物医学研究。这些障碍 有必要进一步发展和实施可持续和公平的伙伴关系 社区合作伙伴和学术机构通过合作开发、互惠转让 知识和专门知识，以改善少数族裔老年人的招聘和留住。 使用自适应和互惠的“集体影响”设计，NJMAC将利用和建立团队- 罗格斯健康与合作推广研究所与社区合作推广新泽西州的科学 组织促进对少数族裔老年人的信任，并实现社区需求和 研究努力。拥有全州范围的基础设施和与文化相关的社区研究的记录 参与，我们的目标是：1)在学术和社区合作伙伴中建立和维持研究能力 通过建立协作社区指导委员会，并探索协作者之间的信任，以充分 了解开展研究的障碍、挑战以及种族/民族和社会文化背景 随着新泽西州的非裔美国人、西班牙裔和亚洲人老龄化；2)吸引社区成员， 他们的家人和伴侣通过有文化针对性和语言上适当的互惠教育， 培训和测量；管理研究存储库，以了解和记录信任和可行性 研究招募和保留；3)将团队科学作为关键平台进行扩展、催化和评估 对老龄化人口进行协作研究，并利用迭代平台实现过程和结果 在非裔美国人、西班牙裔和亚裔人群中进行评估；以及4)将调查结果和经验教训转化为 通过NJMAC了解到的信息，为未来在老龄化和AD-ADRD方面的学术-社区伙伴关系提供信息 研究；协作构建研究资源，以推进不同领域的招聘/保留流程 地方和国家一级的社区环境。调查结果和吸取的教训将产生重大影响 用于建立社区-学术研究伙伴关系、与文化相关的研究、实践和政策。

Abstract In response to PAR-18-749 (R24) to build collaborative teams to improve methods and outcomes regarding research participant recruitment and retention, we propose the New Jersey Minority Aging Collaborative (NJMAC) to improve research recruitment and retention and support culturally targeted and linguistically appropriate research for African American, Hispanic, and Asian older adults and their families. While NJ ranks as the 2nd wealthiest state by per capita income and 12th best in the country for overall health, there is a paradox in considering other population health rankings where New Jersey ranks one of the worst in disparity in health status (46th). For older adults in NJ, there are equally as large disparities when it comes to health and well-being especially among minority older adults, which is exacerbated by a lack of engagement in biomedical and social research. Additionally, there has been inadequate integration of community support necessary to empower minority communities in NJ to be fully engaged in biomedical research. These impediments necessitate further development and implementation of sustainable and equitable partnership among community partners and academic institutions through collaborative development, reciprocal transfer of knowledge, and expertise to improve recruitment and retention among minority older adults. Using an adaptive and reciprocal “collective impact” design, the NJMAC will leverage and build team- science in NJ through Rutgers Institute for Health and Cooperative Extension in partnership with community organizations to foster trust with minority older adults and achieve greater intergration of community needs and research efforts. With a state-wide infrastructure and track record of culturally relevant community-research engagement, we aim to: 1) Build and sustain research capacity among academic and community partners through building a collaborative community steering committee and explore trust between collaborators to fully understand the barriers, challenges, and racial/ethnic and socio-cultural contexts of conducting research in and with African-American, Hispanic, and Asian aging populations across NJ; 2) Engage community members, their families, and partners through culturally targeted and linguistically appropriate reciprocal education, training, and measurements; manage a research repository to understand and document trust and feasibility of research recruitment and retention; 3) Expand, catalyze, and assess team science as a critical platform for collaborative research on aging populations and leverage an iterative platform for process and outcome evaluation among African-American, Hispanic, and Asian populations; and 4) Translate findings and lessons learned through the NJMAC to inform future academic-community partnerships in aging and AD-ADRD research; collaboratively build research resource to advance processes for recruitment/retention in diverse community settings at local and national levels. Findings and lessons learned will have significant implications for building community-academic research partnerships, culturally relevant research, practice, and policy.