BREATHE - The Health Data Research Hub for Respiratory Health Capital Award

BREATHE - 呼吸健康资本奖健康数据研究中心

• 批准号: MC_PC_22006
• 负责人: Aziz Sheikh
• 金额: $ 50.97万
• 依托单位: University of Edinburgh
• 依托单位国家: 英国
• 项目类别: Intramural
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MC_PC_22006
• 关键词: BREATHE; Health; Data; Research; Hub

What is the problem?Everyone in the UK will have a respiratory illness at some point in their life. We have the best datasets in the world – which should be used to improve respiratory health – but these are currently very difficult to find, access and use.What do we want to do?People in the UK deserve the best respiratory health. We want to make respiratory health better by changing the way the NHS, pharmaceutical companies, charities and researchers use data.How will we do it?We will continue to develop BREATHE (the health data research hub for respiratory health) where trained, approved experts can access respiratory data to benefit patients and the public. We will make it easier for experts to use data in safe and secure ways.How will this benefit patients?BREATHE will support high quality research and cutting-edge innovation that will improve the lives of people living with respiratory conditions in the UK. It is important that patients and the public are involved with this project throughout, including from the very start. This is why there are patient and public members living with respiratory conditions who have worked with us on developing BREATHE and who are committed to delivering BREATHE’s goals.

有什么问题吗？在英国，每个人都会在人生的某个阶段患上呼吸系统疾病。我们拥有世界上最好的数据集——这些数据集应该用于改善呼吸系统健康——但目前很难找到、获取和使用这些数据集。我们想做什么？英国人应该拥有最好的呼吸系统健康。我们希望通过改变NHS、制药公司、慈善机构和研究人员使用数据的方式，改善呼吸系统健康。我们该怎么做呢？我们将继续发展BREATHE（呼吸健康数据研究中心），在那里，经过培训和批准的专家可以访问呼吸数据，使患者和公众受益。我们将使专家更容易安全地使用数据。这对病人有什么好处？BREATHE将支持高质量的研究和尖端创新，这将改善英国呼吸系统疾病患者的生活。重要的是，患者和公众自始至终参与到这个项目中，包括从一开始就参与进来。这就是为什么有病人和公众成员生活在呼吸条件下，他们在发展呼吸上和我们一起工作，并且谁致力于交付呼吸的目标。