BREATHE - The Health Data Research Hub for Respiratory Health

“有什么问题吗？在英国，每个人都会在一生中的某个时候患上呼吸道疾病。我们拥有世界上最好的数据集--这些数据集应该被用来改善呼吸系统健康--但目前这些数据集很难找到、访问和使用。我们想做什么？英国人应该得到最好的呼吸健康。我们希望通过改变NHS、制药公司、慈善机构和研究人员使用数据的方式来改善呼吸系统健康。我们将如何做到这一点？我们将创建一个中心（称为BREATHE），经过培训和批准的专家可以访问呼吸数据，使患者和公众受益。我们将使专家更容易以安全可靠的方式使用数据。这将如何使患者受益？Breathe将支持高质量的研究和尖端创新，以改善英国呼吸系统疾病患者的生活。重要的是，患者和公众自始至终都要参与这个项目，包括从一开始。这就是为什么有病人和公众成员生活与呼吸条件谁曾与我们合作，制定这一建议，谁是致力于实现呼吸的目标。"

"What is the problem?Everyone in the UK will have a respiratory illness at some point in their life. We have the best datasets in the world – which should be used to improve respiratory health – but these are currently very difficult to find, access and use.What do we want to do?People in the UK deserve the best respiratory health. We want to make respiratory health better by changing the way the NHS, pharmaceutical companies, charities and researchers use data.How will we do it?We will create a Hub (called BREATHE) where trained, approved experts can access respiratory data to benefit patients and the public. We will make it easier for experts to use data in safe and secure ways.How will this benefit patients?BREATHE will support high quality research and cutting-edge innovation that will improve the lives of people living with respiratory conditions in the UK. It is important that patients and the public are involved with this project throughout, including from the very start. This is why there are patient and public members living with respiratory conditions who have worked with us on developing this proposal and who are committed to delivering BREATHE’s goals."