CORE--CLINICAL

一、目标 1.为镰状细胞病患者提供全面护理 2.确保为镰状细胞病患者提供的护理 通过将基本的和 临床护理结构的临床研究 3.维持所有病人的临床事件资料库。 诊所、急诊室就诊和入院 4.向病人及其家属介绍在 镰状细胞病，并鼓励他们参与我们不同的 研究项目

I. Aims 1. To provide comprehensive care to patients with sickle cell disease 2. To ensure that the care delivered to patients with sickle cell disease is maintained at the highest level of excellence by integrating basic and clinical research into the fabric of clinical care 3. To maintain a database of clinical events of all patients seen in clinic, emergency room visits, and hospital admissions 4. To inform patients and their families of different research efforts in sickle cell disease and encourage their participation in our different research projects