Children's Oncology Group NCI Community Oncology Research Program (NCORP) Research Base Grant

NCI多样性副刊摘要 这项申请是对儿童肿瘤学小组(COG)国家癌症研究所的多样性补充 (NCI)社区肿瘤学研究计划(NCORP)研究基础补助金(UG1CA189955)。金融 正在接受ALL治疗的儿童和青少年的父母/监护人(“父母”)的痛苦是 由COG NCORP研究基地资助的NCI批准的协议ACCL20N1CD进行评估 格兰特。此COG父协议利用NCORP网络与社区和 美国各地少数族裔/服务不足的儿科癌症机构招募不同的参与者并改善 研究结果的概括性。 财务困境是指因有害的经济负担而产生的与金钱有关的心理困扰。 对癌症的护理。ALL是最常见的儿童癌症类型，治疗需要两年以上 频繁的门诊和住院就诊。这一漫长而复杂的治疗方案有助于 金融毒害和金融困境。然后，财务困境可能会促使财务应对行为 对癌症治疗的坚持性产生负面影响。某些家庭特征，如拉丁裔种族或 英语以外的首选语言与财务困境的风险更大。《知识》 拉丁裔种族或英语以外的首选语言是财务困境的风险因素 财政困难对儿童癌症的临床影响是有限的。 乔安娜·罗伯斯，医学博士，维克森林大学的一名双语拉丁裔早期职业内科科学家 医学院，有儿科癌症差异的背景，并有改善的长期目标 为未得到充分服务的人群提供公平的癌症护理和生活质量。作为多样性的补充， 家长礼仪，她建议：1)定性地探索语言和文化障碍的经历 关于拉丁裔和/或西班牙语父母的财务负担，包括财务困难筛查 和在儿童治疗期间为ALL提供的金融导航服务，2)描述特征 在为儿科癌症患者服务的NCORP网站上进行财务困境筛查和财务导航。 我们的假设是，儿童癌症站点提供较高比例的拉丁裔和西班牙语人群 人口将不太可能提供财务困境筛查和导航服务以及Latinx和/或 说西班牙语的父母会报告说，文化和语言障碍增加了经济困难。这个 本附录的调查结果将突出未来针对金融机构的干预措施的潜在机会 接受儿童癌症治疗的拉丁裔家庭的痛苦。

NCI Diversity Supplement Abstract This application is a diversity supplement to the Children’s Oncology Group (COG) National Cancer Institute (NCI) Community Oncology Research Program (NCORP) Research Base Grant (UG1CA189955). Financial distress in parents/guardians (“parents”) of children and adolescents undergoing treatment for ALL is being evaluated by the NCI approved protocol ACCL20N1CD that is funded under the COG NCORP Research Base Grant. This COG parent protocol leverages the NCORP network to collaborate with Community and Minority/Underserved pediatric cancer institutions across the U.S. to recruit diverse participants and improve the generalizability of the research findings. Financial distress is the psychological distress related to money resulting from harmful financial burden of cancer care. ALL is the most common type of childhood cancer with treatment requiring over two years of frequent outpatient and inpatient visits. This prolonged and complicated treatment regimen contributes to financial toxicity and financial distress. Financial distress may then precipitate financial coping behaviors that negatively impact cancer treatment adherence. Certain family characteristics, such as Latinx ethnicity or preferred language other than English, are associated with a greater risk of financial distress. The knowledge of Latinx ethnicity or preferred language other than English as risk factors for financial distress and the overall clinical impact of financial distress in childhood cancer is limited. Joanna Robles, MD, is a bilingual Latina early career physician scientist at Wake Forest University School of Medicine, with a background in pediatric cancer disparities and a long-term goal of improving equitable cancer care delivery and quality of life for underserved populations. As a diversity supplement to the parent protocol, she proposes to: 1) To qualitatively explore the experiences of language and cultural barriers on Latinx and/or Spanish-speaking parents regarding financial burden including financial distress screening and financial navigation services provided during their child’s treatment for ALL, 2) To describe characteristics of financial distress screening and financial navigation at NCORP sites that serve pediatric cancer patients. Our hypothesis is that pediatric cancer sites serving higher percentages of Latinx and Spanish-speaking populations will be less likely to provide financial distress screening and navigation services and Latinx and/or Spanish-speaking parents will report financial distress is increased by cultural and language barriers. The findings from this supplement will highlight potential opportunities for future interventions targeting financial distress in Latinx families of children undergoing pediatric cancer treatment.