Children's Oncology Group NCI Community Oncology Research Program (NCORP) Research Base Grant

儿童肿瘤学组 NCI 社区肿瘤​​学研究计划 (NCORP) 研究基地拨款

• 批准号: 10818193
• 负责人: BRAD H POLLOCK
• 金额: $ 17.89万
• 依托单位: PUBLIC HEALTH INSTITUTE
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-08-01 至 2025-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10818193
• 关键词: Acute Lymphocytic Leukemia; Adolescent; Affect; Cancer Center; Cancer Patient; Characteristics; Child; Childhood Cancer Treatment; Clinical; Collaborations; Communities; Community Clinical Oncology Program; Coping Behavior; Equity; Ethnic Origin; Family; Family Characteristics; Financial Hardship; Funding; Future; Goals; Grant; Inpatients; Institution; Intervention; Knowledge; Language; Latina; Latinx; Malignant Childhood Neoplasm; Minority; National Cancer Institute; Newly Diagnosed; Outpatients; Parents; Participant; Pediatric Oncology Group; Physicians; Population; Protocols documentation; Quality of life; Reporting; Research; Risk; Risk Factors; Scientist; Services; Site; Treatment Protocols; Underserved Population; United States; Universities; Visit; base; bilingualism; cancer care; cancer health disparity; cancer site; cancer therapy; care delivery; career; experience; financial toxicity; forest; improved; medical schools; programs; psychological distress; recruit; screening; tool; treatment adherence

NCI Diversity Supplement Abstract This application is a diversity supplement to the Children’s Oncology Group (COG) National Cancer Institute (NCI) Community Oncology Research Program (NCORP) Research Base Grant (UG1CA189955). Financial distress in parents/guardians (“parents”) of children and adolescents undergoing treatment for ALL is being evaluated by the NCI approved protocol ACCL20N1CD that is funded under the COG NCORP Research Base Grant. This COG parent protocol leverages the NCORP network to collaborate with Community and Minority/Underserved pediatric cancer institutions across the U.S. to recruit diverse participants and improve the generalizability of the research findings. Financial distress is the psychological distress related to money resulting from harmful financial burden of cancer care. ALL is the most common type of childhood cancer with treatment requiring over two years of frequent outpatient and inpatient visits. This prolonged and complicated treatment regimen contributes to financial toxicity and financial distress. Financial distress may then precipitate financial coping behaviors that negatively impact cancer treatment adherence. Certain family characteristics, such as Latinx ethnicity or preferred language other than English, are associated with a greater risk of financial distress. The knowledge of Latinx ethnicity or preferred language other than English as risk factors for financial distress and the overall clinical impact of financial distress in childhood cancer is limited. Joanna Robles, MD, is a bilingual Latina early career physician scientist at Wake Forest University School of Medicine, with a background in pediatric cancer disparities and a long-term goal of improving equitable cancer care delivery and quality of life for underserved populations. As a diversity supplement to the parent protocol, she proposes to: 1) To qualitatively explore the experiences of language and cultural barriers on Latinx and/or Spanish-speaking parents regarding financial burden including financial distress screening and financial navigation services provided during their child’s treatment for ALL, 2) To describe characteristics of financial distress screening and financial navigation at NCORP sites that serve pediatric cancer patients. Our hypothesis is that pediatric cancer sites serving higher percentages of Latinx and Spanish-speaking populations will be less likely to provide financial distress screening and navigation services and Latinx and/or Spanish-speaking parents will report financial distress is increased by cultural and language barriers. The findings from this supplement will highlight potential opportunities for future interventions targeting financial distress in Latinx families of children undergoing pediatric cancer treatment.

NCI多样性补充摘要 此应用程序是一个多样性的补充，儿童肿瘤组（COG）国家癌症研究所 (NCI)社区肿瘤学研究计划（NCORP）研究基础资助（UG 1CA 189955）。金融 正在接受ALL治疗的儿童和青少年的父母/监护人（“父母”）的痛苦， 由NCI批准的方案ACCL 20 N1 CD评估，该方案由COG NCORP研究基地资助 格兰特.该COG父协议利用NCORP网络与社区协作， 美国各地的少数民族/服务不足的儿科癌症机构招募不同的参与者， 研究结果的普遍性。 财务困境是由于有害的财务负担而导致的与金钱有关的心理困扰 癌症护理。ALL是最常见的儿童癌症类型，治疗需要两年以上的时间， 频繁的门诊和住院访问。这种长期和复杂的治疗方案有助于 财务毒性和财务困境。财务困境可能会引发财务应对行为， 对癌症治疗依从性产生负面影响。某些家庭特征，如拉丁裔或 英语以外的首选语言，与财务困境的风险更大。知识 拉丁裔或英语以外的首选语言是财务困境的风险因素， 经济困难对儿童癌症的临床影响有限。 乔安娜·罗伯斯，医学博士，是维克森林大学的双语拉丁裔早期职业医生科学家 医学院，具有儿科癌症差异的背景和改善的长期目标 为得不到充分服务的人群提供公平的癌症护理和生活质量。作为一种多样性的补充， 家长协议，她建议：1）定性探讨语言和文化障碍的经验 拉丁裔和/或讲西班牙语的父母关于经济负担，包括财务困境筛查 和财务导航服务，在他们的孩子的治疗过程中为所有，2）描述特征 财务困境筛查和财务导航在NCORP网站，为儿童癌症患者。 我们的假设是，儿童癌症网站服务的拉丁裔和西班牙语的比例较高， 人口将不太可能提供财务困境筛查和导航服务，拉丁美洲和/或 讲西班牙语的父母会报告说，文化和语言障碍增加了经济困境。的 本补编的调查结果将突出强调未来针对金融干预的潜在机会。 正在接受儿科癌症治疗的拉丁裔儿童家庭的痛苦。