Core E -Community Engagement and Clinical Informatics Core

核心电子社区参与和临床信息学核心

• 批准号: 10609767
• 负责人: Homero Erwin del Pino
• 金额: $ 27.09万
• 依托单位: UNIVERSITY OF CALIFORNIA LOS ANGELES
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-04-08 至 2027-03-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10609767
• 关键词: 13 year old; AIDS prevention; Acceleration; Africa; African American; Appointment; Area; Black race; Budgets; Clinic; Clinical Data; Clinical Informatics; Clinical Sciences; Clinical Trials; Collaborations; Color; Communication; Communities; Community Health; Community Networks; County; Data; Data Storage and Retrieval; Development; Disease remission; Ensure; Epidemic; Equity; Evaluation; Faculty; Fostering; Funding Opportunities; Generations; HIV; HIV Infections; HIV disparities; HIV/AIDS; Health; Health Insurance Portability and Accountability Act; Health Sciences; Health Service Area; Heart; Incidence; Individual; Infrastructure; Laboratories; Latin America; Latinx; Los Angeles; Medical; Medical Research; Medicine; Minority; Outcome; Participant; Patients; Persons; Pilot Projects; Population; Prevention Research; Process; Productivity; Provider; Registries; Research; Research Personnel; Research Proposals; Research Support; Retrieval; Science; Scientific Advances and Accomplishments; Shapes; Shoulder; Site; Thinking; Training; Treatment outcome; Underrepresented Minority; Underrepresented Populations; Universities; Vulnerable Populations; Work; care outcomes; community based participatory research; community engagement; community organizations; data management; faculty community; global health; health equity; improved; interest; long-standing disparities; member; minority communities; minority investigator; mortality; programs; racial minority; research study; social media; summer institute; treatment research; underserved urban area

Core E: Project Summary/Abstract: The HIV epidemic, locally and globally, is fueled by long-standing inequities. It is imperative that HIV research efforts align with the needs, priorities, and strengths of those communities that for too long have shouldered the burden of HIV disparities. Thus, the UCLA-CDU CFAR Community Engagement and Clinical Informatics Core (CECIC) aims to accelerate the impact of current HIV research for vulnerable populations in Los Angeles (LA) County and communities across Africa and Latin America. This Core will engage academic and community partners, LA County clinics, and global partners in a multidirectional and collaborative effort to develop and implement new ways to decrease the incidence of HIV, improve treatment outcomes of PLWH, and advance ART-free remission in communities of color disproportionately impacted by HIV. The heart of the CECIC is CDU's Community Faculty, a unique program in which community leaders who have impacted the health outcomes of their communities receive a faculty appointment at CDU. A Community Faculty member will be one of the co-directors of this core. The aims of this core are: 1): To provide training and technical assistance in Community-Based Participatory Research (CBPR) to support productive collaborations between CFAR investigators and community partners; 2) To expand CBPR to populations disproportionately impacted by HIV in Los Angeles and globally through the strategic use of Community Advisory Boards (CABs) and a research registry (RSVP); and 3) To create infrastructure to conduct Clinical Informatics-supported research with community medical providers in Los Angeles to support analysis of EHR data and to inform best practices that are responsive to patients' and providers' changing needs. The CECIC will be housed at Charles R. Drew University of Medicine and Science (CDU) and led by CDU investigators. CDU is the only designated minority-serving health-sciences university in LA County with a population of more than 10 million residents, 70 percent of whom are from minority communities. CDU serves as the only academic health sciences and medical research center for the local service area's 1.5 million residents, the largest underserved urban area in the US, made up predominantly of Latinx (68%) and Black/African-American (28%) individuals. The surrounding area has the second highest incidence of HIV/AIDS among people aged 13 years and older in the county, almost twice the national average, and the second highest HIV-infection related mortality rate. This makes CDU the ideal site to support CBPR that promises to have immediate impact on surrounding communities. By promoting advanced CBPR practices, the CECIC will expand and transform how HIV research is conducted in Los Angeles and globally. We will foster a new generation of partnerships between early stage investigators and underrepresented minority investigators, and community- based organizations to decrease HIV incidence and improve care outcomes.

核心E：项目摘要/摘要：局部和全球的艾滋病毒流行是由长期存在的 不平等。艾滋病毒的研究工作必须符合这些工作的需求，优先事项和优势 长期以来，社区掩盖了艾滋病毒差异的负担。因此，UCLA-CDU CFAR 社区参与和临床信息学核心（CECIC）旨在加快当前艾滋病毒的影响 洛杉矶县（洛杉矶）县和非洲和拉丁社区的弱势人口研究 美国。该核心将与学术和社区合作伙伴，洛杉矶县诊所和全球合作伙伴一起参与 多方向和协作的努力，以开发和实施新的方法来降低艾滋病毒的发病率， 改善PLWH的治疗结果，并在颜色社区中提高艺术的缓解 受艾滋病毒的影响不成比例。 Cecic的核心是CDU的社区教师，这是一个独特的计划 哪些影响其社区健康成果的社区领导人获得了教师 在CDU任命。社区教职员工将是该核心的联合导演之一。这个目的 核心为：1）：在社区参与研究（CBPR）中提供培训和技术援助 支持CFAR调查人员与社区合作伙伴之间的生产合作； 2）扩大CBPR 通过洛杉矶和全球受到艾滋病毒影响的人群的战略使用 社区咨询委员会（CABS）和研究注册表（RSVP）； 3）创建基础设施以进行 与洛杉矶社区医疗提供者的临床信息学支持的研究，以支持分析 EHR数据并告知对患者和提供者不断变化的需求的最佳实践。这 CECIC将安置在Charles R. Drew医学与科学大学（CDU），由CDU领导 调查人员。 CDU是洛杉矶县唯一指定的少数派服务卫生学院 超过1000万居民的人口，其中70％来自少数民族社区。 CDU服务 作为当地服务区150万的唯一学术健康科学和医学研究中心 居民是美国服务不足的城市地区，主要由拉丁裔（68％）和 黑人/非裔美国人（28％）个人。周围地区的艾滋病毒/艾滋病发病率第二高 在该县13岁及以上的人中，几乎是全国平均水平的两倍，第二高 HIV感染相关的死亡率。这使CDU成为支持CBPR的理想网站，该网站有望拥有 直接影响周围社区。通过促进高级CBPR实践，CECIC将扩大 并改变了洛杉矶和全球的艾滋病毒研究的方式。我们将培养新一代 早期调查人员与代表性不足的少数群体调查员与社区 - 基于组织降低艾滋病毒发病率并改善护理结果的组织。