CRII:SCH: Parent-2-Parent: Supporting Dyadic Caregiving Coordination in the Hospital

当一名儿童住院时，现有的支持网络会立即采取行动。在这种意想不到的、压力很大的情况下，父母必须迅速吸收复杂的临床信息，承担新的照顾任务，同时不放弃其他责任。此外，家庭内部沟通和父母的应对策略是住院后健康结果的重要预测因素。人机交互和计算机支持的协同工作研究人员正在积极研究技术如何支持儿童和他们的护理团队之间以及父母和孩子之间的协调。然而，很少有研究关注技术如何在住院期间支持和增强父母一方。目前的技术并没有针对这些情况进行优化，如果不仔细设计和实施，甚至可能加剧家庭压力。该项目的长期目标是为社会计算建立基本的设计策略，使在意外的、紧张的情况下（如孩子住院）能够有效地进行二元护理协调，并展示这些技术如何在高度不确定的情况下支持决策和信息共享。本提案的具体目标是确定和证明社会技术如何支持和增强父母双方在住院期间有效沟通和协调的能力。通过结合严格的定性调查、家长驱动的设计会议和基于医院的试点技术部署，研究者将解决两个具体目标：1)描述当前育儿双元组中的沟通和协调实践；2)设想、演示和验证双元组护理支持技术。这项工作将以儿童癌症为基础，儿童癌症是青少年疾病相关死亡的主要原因。然而，所提出的工作对在不同的医疗保健背景下的二元护理有影响。该奖项反映了美国国家科学基金会的法定使命，并通过使用基金会的知识价值和更广泛的影响审查标准进行评估，被认为值得支持。

When a child is hospitalized, existing support networks spring into action. In this unanticipated, stressful situation, parents must quickly absorb complicated clinical information and take on new caregiving tasks, without abandoning other responsibilities. Furthermore, within-family communication and coping strategies of the parents, or dyad, are significant predictors of post-hospitalization health outcomes. Human-Computer Interaction and Computer-Supported Cooperative Work researchers are actively studying how technology can support coordination between children and their care team, and between parents and children. However, little research has focused on how technology can support and augment the parenting dyad during hospitalization. Current technologies are not optimized for these contexts, and may even compound family stress if not carefully designed and implemented.The long-term goal of this project is to establish fundamental design strategies for social computing that enable effective dyadic caregiving coordination in unanticipated, stressful situations, such as the hospitalization of one's child, and show how those technologies could support decision-making and information sharing amid high degrees of uncertainty. The specific objective of this proposal is to identify and demonstrate how social technologies can support and augment the ability of parenting dyads to effectively communicate and coordinate during hospitalization. Through a combination of rigorous qualitative investigations, parent-driven design sessions, and hospital-based pilot technology deployments, the investigator will address two specific aims: 1) Characterize current communication and coordination practices within parenting dyads, and 2) Envision, demonstrate, and verify dyadic caregiving support technologies. This work will be grounded in the case of pediatric cancer, the leading cause of disease-related deaths in youth. However, the proposed work has implications for dyadic caregiving in diverse healthcare contexts.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.