Vermont Cancer Survivor Surveillance System

描述（由申请人提供）：这项R-21申请的目标是与癌症幸存者社区合作，帮助改善他们的生活质量。贫穷、低识字技能和农村状况可能导致癌症治疗、癌症生存能力和治疗完成后的生活质量方面的健康差距。我们的目标将有助于澄清低收入、教育和农村居住在癌症幸存者未满足需求中的作用。这项提案是由研究人员和癌症幸存者撰写的，我们计划在实施这项提案的两年内扩大我们的合作。这项提议有两个主要目的。在目标1中，我们将与佛蒙特州癌症幸存者社区建立合作伙伴关系，该社区将监督计划、实施、分析和报告结果。作为目标1的一部分，我们将开发一个基于人群的区域性多用途癌症幸存者登记处，其中将包括长期和短期幸存者。在目标2中，我们将在以下领域描述癌症幸存者未满足的癌症相关需求：治疗；信息和决策支持；情感、社会和精神；物理;日常生活活动及后勤；卫生和保健；经济和法律；以及导航服务交付系统。我们将通过以下个人特征和历史来描述这些需求：农村居住、教育、收入、诊断阶段、诊断后的时间、人口统计学（性别、年龄）、治疗类型（放射治疗、手术、化疗）和健康保险。我们假设农村居住、低收入和教育程度、年龄和年龄、诊断时间较短和诊断晚期疾病对未满足的生存需求都有显著的独立影响。此外，我们将创造一个环境，使社区参与研究过程和议程。我们将制定、收集和分析过程措施，使我们能够不断从社区参与的过程中学习，并报告我们所吸取的经验教训。我们将采用定性和定量的方法来实现我们的目标。我们相信，我们的建议更强有力，因为我们与幸存者的伙伴关系，我们的研究更有可能成功，因为基于社区的参与性研究。公共卫生相关性：本R-21应用程序的目标是与癌症幸存者社区合作，帮助改善他们的生活质量。贫穷、低识字技能和农村状况可能导致癌症治疗、癌症生存能力和治疗完成后的生活质量方面的健康差距。

DESCRIPTION (provided by applicant): The goal of this R-21 application is to work with the cancer survivorship community to help improve their quality of life. Poverty, low literacy skills and rurality can lead to health disparities in cancer treatment, the ability to survive cancer and the quality of life after treatment is completed. Our aims will help clarify the role of low income and education, and rural residency in the unmet needs of cancer survivors. This proposal was written by researchers and cancer survivors, and we plan to expand our collaborations throughout the two years of implementing this proposal. There are 2 main aims in this proposal. In Aim 1 we will develop a collaborative partnership with the Vermont cancer survivor community that will oversee the planning, implementation and analyzing and reporting of results. As part of Aim 1 we will develop a regional population-based multi-purpose cancer survivor registry that will include both long term and short term survivors. In Aim 2 we will describe the unmet cancer}related needs of cancer survivors in the following areas: treatment; information and decision support; emotional, social and spiritual; physical; activities and logistics of daily living; health and wellness; economic and legal; and navigating service delivery systems. We will describe these needs by the following personal characteristics and history: rural residency, education, income, stage of diagnosis, time since diagnosis, demographics (gender, age), types of treatment (radiation therapy, surgery, chemotherapy), and health insurance. We hypothesize that rural residency, low income and education, older and younger age, shorter time since diagnosis and diagnosis of late-stage disease will each have significant independent effects on the unmet survivorship needs. In addition we will create an environment that engages the community in the research process and agenda. We will develop, collect and analyze process measures that will enable us to continually learn from the process of community participation and to report on our lessons learned. We will use both qualitative and quantitative methods to accomplish our aims. We believe that our proposal is stronger from our partnership with survivors and that our study is more likely to be successful because of community-based participatory research. PUBLIC HEALTH RELEVANCE: The goal of this R-21 application is to work with the cancer survivorship community to help improve their quality of life. Poverty, low literacy skills and rurality can lead to health disparities in cancer treatment, the ability to survive cancer and the quality of life after treatment is completed.