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Developing a Patient Education Program for Pediatric Chronic Illness : A multidisciplinary Care Approach-Self-management Support for Children with Type I Diabetes and Family -

制定儿科慢性病患者教育计划：多学科护理方法 - 对 I 型糖尿病儿童及其家庭的自我管理支持 -

基本信息

批准号：
13672509
负责人：
NAKAMURA Keiko
金额：
$ 2.3万
依托单位：
Ehime University
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (C)
财政年份：
2001
资助国家：
日本
起止时间：
2001 至 2002
项目状态：
已结题

项目摘要

The purpose of this research was to investigate a patient education model for children with chronic illness through a multidisciplinary care approach. This study was consisted of five projects and the summary of these projects were indicated as follows :1. Developing a videophone support system for children with Type 1 diabetes and familyA new device, which transmits the blood glucose data via cellular phone, was used to extend a videophone support system. Seven rural children with diabetes and their families have received on-going educational videophone support for 2 years. The children's glycemic control and diabetes management skills were improved.2. Identifying children's perspectives in Self-monitoring blood glucoseChildren with type 1 diabetes experienced self-monitoring blood glucose as it was bothering and endurable rather than painful. The developmental stages, sexes, and the onset ages of diabetes should be considered as important factors when educating self-monitoring blood … More glucose to children.3. Developing a camp education model for children with type 1 diabetesThe educational effects of diabetes summer camp on children and the educators' satisfaction in their diabetes education were evaluated. The experience of the direct contact with diabetes children, the quality of information about children, and sufficient preparation for diabetes camp were correlated with the educators' positive satisfaction in diabetes education.4. Assessing family perspectives and experiences in living with diabetic adolescentsThe qualitative research interviews were conducted to assess family perspectives and experiences in living with diabetic adolescents. A model of family support for coping with unique experiences of children was explored.5. Investigating the perspectives of hospitalized children and their parentsThe study employed qualitative and quantitative methods. The examination of parents' experiences and perspectives revealed that there was a discrepancy between mothers' perspectives and fathers' perspectives in their children's hospitalization. Less

本研究旨在探讨一种以多学科照护模式为基础的慢性病病童教育模式。本研究共分五个研究项目，主要内容如下：1。1型糖尿病患儿及家庭可视电话支持系统的研制一种新型的血糖数据传输装置，用于扩展可视电话支持系统。7名农村糖尿病儿童及其家庭接受了持续2年的教育可视电话支持。儿童的血糖控制和糖尿病管理技能得到提高. 1型糖尿病儿童的自我血糖监测是一种麻烦和可忍受的而不是痛苦的自我血糖监测。在教育自我监测血液时，应将糖尿病的发育阶段、性别和发病年龄视为重要因素 ...更多信息给孩子吃葡萄糖。1型糖尿病儿童夏令营教育模式的建立评价糖尿病夏令营对儿童的教育效果及教育者对糖尿病教育的满意度。直接接触糖尿病儿童的经历、儿童相关信息的质量、糖尿病夏令营的充分准备与教育者对糖尿病教育的积极满意度相关.评估糖尿病青少年的家庭观点和生活经验进行定性研究访谈，以评估家庭观点和生活经验的糖尿病青少年。探讨了家庭支持应对儿童独特经历的模式。本研究采用质性与定量相结合的方法，对住院儿童及其家长的观点进行调查。父母的经验和观点的检查发现，有母亲和父亲的观点在他们的孩子住院的差异。少