Developing a Patient Education Program for Pediatric Chronic Illness : A multidisciplinary Care Approach-Self-management Support for Children with Type I Diabetes and Family -

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The purpose of this research was to investigate a patient education model for children with chronic illness through a multidisciplinary care approach. This study was consisted of five projects and the summary of these projects were indicated as follows :1. Developing a videophone support system for children with Type 1 diabetes and familyA new device, which transmits the blood glucose data via cellular phone, was used to extend a videophone support system. Seven rural children with diabetes and their families have received on-going educational videophone support for 2 years. The children's glycemic control and diabetes management skills were improved.2. Identifying children's perspectives in Self-monitoring blood glucoseChildren with type 1 diabetes experienced self-monitoring blood glucose as it was bothering and endurable rather than painful. The developmental stages, sexes, and the onset ages of diabetes should be considered as important factors when educating self-monitoring blood … More glucose to children.3. Developing a camp education model for children with type 1 diabetesThe educational effects of diabetes summer camp on children and the educators' satisfaction in their diabetes education were evaluated. The experience of the direct contact with diabetes children, the quality of information about children, and sufficient preparation for diabetes camp were correlated with the educators' positive satisfaction in diabetes education.4. Assessing family perspectives and experiences in living with diabetic adolescentsThe qualitative research interviews were conducted to assess family perspectives and experiences in living with diabetic adolescents. A model of family support for coping with unique experiences of children was explored.5. Investigating the perspectives of hospitalized children and their parentsThe study employed qualitative and quantitative methods. The examination of parents' experiences and perspectives revealed that there was a discrepancy between mothers' perspectives and fathers' perspectives in their children's hospitalization. Less