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中文摘要
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项目概要-核心C:重新登记和保留核心 招聘和保留核心(RRC)的加州大学戴维斯分校MIND研究所中心的发展, 自闭症谱系障碍的基于表型的治疗将提供一个集中的资源, 并与参与中心所有项目的参与者保持联系。RRC将作为联络人, 项目负责人和参与者及其家庭之间的沟通,以确保项目和家庭的需求都得到满足。 被满足。拥有一个集中的招聘和保留核心, 专门用于确定潜在参与者并招募到相关项目中。每个人的资源 然后,项目可以直接应用于科学目标,从而提高每个项目的生产力。 区域竞争委员会的宗旨和目标是: 1)为中心的项目1、2和3确定和招募合格的参与者。 ·为项目1、2和3制定和分发招聘材料。 ·与萨克拉门托地区的社区医疗保健系统和护理提供者建立并保持联系 识别并推荐合格受试者参加中心研究。 ·参与社区外展,以提高中心研究的知名度。 ·监控MIND研究所受试者跟踪系统,以识别符合中心研究条件的参与者。 ·担任参与者及其家人与项目负责人和共同负责人之间的联络人,以确保 招聘目标正在实现。 2)实施战略,以增加中心纵向组成部分的参与者保留率。 ·在研究访问期间为参与者及其家人提供家庭支持。例如提供 详细的访问描述,在研究访问期间为兄弟姐妹安排托儿服务, 家庭要求简化研究参与。 ·通过通讯在纵向访问之间与参与者和家庭保持定期联系, 每年生日卡的参与者,家长教育会议,和MIND研究所的活动。
英文摘要
PROJECT SUMMARY – CORE C: RECRUITMENT AND RETENTION CORE The Recruitment and Retention Core (RRC) of the UC Davis MIND Institute Center for the Development of Phenotype-Based Treatments of Autism Spectrum Disorder will provide a centralized resource for initiating and maintaining contact with participants involved in all Projects of the Center. The RRC will serve as a liaison between Project Leaders and participants and their families to ensure that both project and family needs are being met. Having a centralized Recruitment and Retention Core maximizes efficiency by having staff dedicated solely to identifying potential participants and recruitment into relevant Projects. Resources for each project can then be applied directly to the scientific aims, thereby increasing productivity within each Project. The aims and objectives of the RCC are: 1) To identify and recruit eligible participants for Projects 1, 2, and 3 of the Center. • Develop and distribute recruitment materials for Projects 1, 2, and 3. • Establish and maintain contacts with Sacramento area community healthcare systems and care providers to identify and refer eligible participants for Center studies. • Engage in community outreach to increase visibility of Center studies. • Monitor the MIND Institute Subject Tracking System to identify eligible participants for Center studies. • Serve as liaison between participants and their families and Project Leaders and co-Leaders to ensure recruitment goals are being met. 2) To implement strategies to increase retention of participants for longitudinal components of the Center. • Provide family support to participants and their families during study visits. For example, providing detailed visit descriptions, arranging childcare for siblings during study visits, accommodating specific requests from families to ease study participation. • Maintain regular contact with participants and families between longitudinal visits through newsletters, annual birthday cards for participants, parent education meetings, and MIND Institute events.
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Neural and developmental trajectories of females with autism spectrum disorder
  • 批准号:
    10614560
  • 项目类别:
  • 资助金额:
    $79.45万
  • 财政年份:
    2022
  • 负责人:
    Christine Wu Nordahl
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Neural and developmental trajectories of females with autism spectrum disorder
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    10443473
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Behavioral and Neurobiological Phenotyping of ASD with Megalencephaly
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    2017
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Neural Phenotypes of Females with Autism Spectrum Disorder
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    8749078
  • 项目类别:
  • 资助金额:
    $69.03万
  • 财政年份:
    2014
  • 负责人:
    Christine Wu Nordahl
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