UTMB Clinical and Translational Science Award

摘要 在美国，超过3400万人为50岁以上的人提供无偿护理。大多数人 妇女和50%的人为痴呆症患者提供护理。拉美裔照顾者在重要方面有所不同 来自非西班牙裔照顾者的方式。照顾者角色是拉美裔美国人和 家庭照顾比职业照顾更受欢迎。然而，我们对此知之甚少 当拉美裔美国人承担起照料角色时，他们独特的特征和资源会影响他们的幸福。这 多样性补充剂将支持西班牙裔临床医生兼科学家，并帮助他变得独立。会的 提供混合方法的培训，以便将基于人口的数据转化为与医疗保健相关的结果 主张采取干预措施，以改善西班牙裔痴呆症患者及其照顾者的福祉。这个 方法是将重点放在配偶为患有痴呆症的伴侣提供护理的夫妇身上。建议数 该计划针对4个领域的培训，以帮助应聘者发展独立的临床和研究生涯 关注西班牙裔痴呆症照顾者的福祉：结合数据来源确定 影响拉美裔照顾者的结局；获得新的方法技能以探索变化 时间；传播和实施关于医疗保健系统中拉美裔照顾者的研究结果；以及 职业发展和领导力发展。多样性副刊研究的具体目标 内容包括：1)分析西班牙裔照顾痴呆症配偶的幸福感和医疗保健使用情况。2) 探索西班牙裔痴呆症照顾者在候选人的大学医疗系统中的需求 结构化面谈。AIM 1将使用与2010-2018年医疗保险相关的健康和退休研究数据。 目标2将包括对西班牙裔照顾者的半结构化访谈。完成这些具体目标和 培训活动将使应聘者具备以下能力：研究结果的统计和分析技能 与西班牙裔护理有关的调查数据和医疗保健索赔；以及定性方法 了解拉美裔照顾者面临的挑战，并设计干预措施以改善他们的福祉。 发展计划包括与一组西班牙裔认知领域的专家合作，以及 健康差距，使用医疗保险索赔数据的培训，学习新的生物统计学方法， 在痴呆症护理、夫妻模式和翻译研究等挑战方面发展专业知识。 预期结果是对西班牙裔痴呆症照顾者和 制定独立的研究计划。来自研究项目的数据和通过 指导计划将导致NIA R01的申请，该申请将实施和评估 改善西班牙裔痴呆症患者及其家庭照顾者预后的干预措施。

Abstract More than 34 million individuals in the USA provide unpaid care for someone over the age of 50. The majority are women and 50% provide care to persons with dementia (PwD). Hispanic caregivers differ in important ways from Non-Hispanic caregivers. The caregiver role is a cultural expectation among Hispanics and caregiving by the family is preferred over professional caregiving. However, we know little about how the unique traits and resources of Hispanics affect their well-being when they assume a caregiving role. This Diversity supplement will support a Hispanic clinician-scientist and help him become independent. It will provide training in mixed methods to translate findings from population-based data linked to health-care claims into interventions to improve the well-being of Hispanics with dementia and their caregivers. The approach is to focus on couples in which a spouse provides care to their partner with dementia. The proposed program targets 4 areas of training to help the candidate develop an independent clinical and research career focused on the well-being of Hispanic dementia caregivers: Combining sources of data to identify factors that affect outcomes among Hispanic caregivers; Acquiring new methodological skills to explore change over time; Disseminating and implementing research findings on Hispanic caregivers in healthcare systems; and Career advancement and leadership development. The specific aims for the Diversity supplement research component are: 1) Analyze wellbeing and healthcare use of Hispanics caring for a spouse with dementia. 2) Explore Hispanic dementia caregivers' needs in the candidate's University healthcare system using semi- structured interviews. Aim 1 will use the Health and Retirement Study data linked to Medicare for 2010-2018. Aim 2 will consist of semi-structured interviews of Hispanic caregivers. Completing these specific aims and training activities will make the candidate competent in: statistical and analytical skills to study the outcomes related to caregiving among Hispanics with survey data and healthcare claims; and qualitative methodologies to understand the challenges of Hispanic caregivers and design interventions to improve their well-being. The development program includes working with a group of experts in the areas of Hispanic cognition and health disparities, training in the use of Medicare claims data, learning new biostatistical methodologies, developing expertise in the challenges of dementia caregiving, couples' models and translational research. The expected outcomes are a rigorous mixed-methods study of Hispanic dementia caregivers and development of an independent research program. Data from the research project and skills obtained through the mentored program will lead to an application for an NIA R01 that will implement and evaluate interventions to improve outcomes of Hispanics with dementia and their family caregivers.