BREATHE - The Health Data Research Hub for Respiratory Health

“问题出在哪里？在英国，每个人都会在一生中的某个时刻患上呼吸道疾病。我们有世界上最好的数据集--应该用来改善呼吸健康--但目前很难找到、获取和使用这些数据集。我们想做什么？英国人应该得到最好的呼吸健康。我们希望通过改变NHS、制药公司、慈善机构和研究人员使用数据的方式来改善呼吸健康。我们将如何做到这一点？我们将创建一个中心(称为呼吸)，训练有素的、经批准的专家可以在这里访问呼吸数据，从而造福患者和公众。我们将使专家更容易以安全可靠的方式使用数据。这将如何造福患者？呼吸将支持高质量的研究和尖端创新，这将改善英国患有呼吸道疾病的人的生活。重要的是，患者和公众从头到尾，包括从一开始就参与到这个项目中来。这就是为什么有患有呼吸系统疾病的患者和公众成员与我们合作制定这项建议，并致力于实现呼吸系统的目标。“

"What is the problem?Everyone in the UK will have a respiratory illness at some point in their life. We have the best datasets in the world – which should be used to improve respiratory health – but these are currently very difficult to find, access and use.What do we want to do?People in the UK deserve the best respiratory health. We want to make respiratory health better by changing the way the NHS, pharmaceutical companies, charities and researchers use data.How will we do it?We will create a Hub (called BREATHE) where trained, approved experts can access respiratory data to benefit patients and the public. We will make it easier for experts to use data in safe and secure ways.How will this benefit patients?BREATHE will support high quality research and cutting-edge innovation that will improve the lives of people living with respiratory conditions in the UK. It is important that patients and the public are involved with this project throughout, including from the very start. This is why there are patient and public members living with respiratory conditions who have worked with us on developing this proposal and who are committed to delivering BREATHE’s goals."