Study of How to Care and Educate for Children with Chronic Disease by Team Approach

团队方法对慢性病儿童的关爱和教育研究

• 批准号: 11672378
• 负责人: NAKAMURA Keiko
• 金额: $ 2.5万
• 依托单位: EHIME UNIVERSITY
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (C)
• 财政年份: 1999
• 资助国家: 日本
• 起止时间: 1999 至 2000
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-11672378/
• 关键词: Children; Typel Diabetes; Diabetes education and support; Self management of Diabetes; Team approach; Videophone; Family nursing Model; Parents Diabetes QOL; テレビ電話; 糖尿病サマーキャンプ; 発達段階

The purposes of study were to prove how to educate for children and adolescents with chronic disease by team approach. We conducted a practical study investigating the lives of pediatric patients with typel diabetes and their families.1) Introduction and review of a patient education support program using videophones.(1) Using videophones, the team supported the self-management of children and adolescents with typel diabetes.(2) We confirmed improved blood sugar level control, improved self-management behavior and more active life-styles.(3) The program strengthened the support of family members and increased the willingness of local communities and schools to support children with typel diabetes.2) Establishment of support system and medical team for children with typel diabetes(1) We developed a Japanese version of the Parents Diabetes Quality Of Life (PDQOL) rating scale to assess the QOL of patients of Children and adolescents with typel diabetes.(2)The Calgary Family Assessment and intervention Models were used families children with typel diabetes to investigate an effective care model to use with such families.3) Investigation of guidance methods that promote self-management skills.

本研究旨在探讨如何以团队教育的方式，对慢性病儿童及青少年进行健康教育。我们进行了一项实用的研究，调查儿童型糖尿病患者及其家人的生活。1）介绍和审查使用视频电话的患者教育支持计划。(1)利用可视电话，该小组支持儿童和青少年型糖尿病的自我管理。(2)我们证实改善血糖水平控制，改善自我管理行为和更积极的生活方式。(3)2）型糖尿病儿童支持系统和医疗团队的建立（1）开发了日本版的父母糖尿病生活质量（PDQOL）评定量表，用于评估儿童和青少年型糖尿病患者的生活质量。（2）采用卡尔加里家庭评估和干预模式对1型糖尿病儿童家庭进行调查，以探讨1型糖尿病儿童家庭的有效护理模式。

项目成果

梅田英子: "糖尿病サマーキャンプでの食事・補食の現状と指導方法"日本糖尿病教育・看護学会誌. 3(2). 110-115 (1999)

Eiko Umeda：“糖尿病夏令营膳食和补充膳食的现状和教学方法”日本糖尿病教育和护理学会杂志3（2）110-115（1999）。

Keiko Nakamura: "Quality of Life for Parents of Children and Adolescents with Type 1 Diabetes."Japanese Journal of Research in Family Nursing. 6(1). 90 (2000)

Keiko Nakamura：“1 型糖尿病儿童和青少年父母的生活质量”。《日本家庭护理研究杂志》。

Keiko Nakamura: "Tele-Care System for Children and Ado.lescents with Typel Diabetes"The 6th Japan -China Frendship Symposium on Diabetes mellitus(Abstracts). 66-66 (1999)

中村惠子：《儿童青少年型糖尿病远程护理系统》第六届日中友好糖尿病研讨会（摘要）。

伊藤卓夫: "目で見る小児糖尿病,膵臓の解剖・生理,小児糖尿病の病態生理"クリニカルスタディ. 21(14). 8-20 (2000)

Takuo Ito：“视觉儿童糖尿病、胰腺的解剖学和生理学以及儿童糖尿病的病理生理学”临床研究 21(14)。

薬師神裕子: "テレビ電話による1型糖尿病患者支援の有用性-自己管理能力が向上した16歳男児への支援経過-"日本看護教育・看護学会学会誌. 4. 163 (2000)

药志上裕子：“通过可视电话对 1 型糖尿病患者进行支持的有用性 - 对提高自我管理能力的 16 岁男孩的支持进展” 日本护理教育护理学院杂志 4. 163 (2000)。