Study of How to Care and Educate for Children with Chronic Disease by Team Approach

本研究旨在探讨如何以团队的方式对慢性疾病儿童及青少年进行教育。我们进行了一项调查儿童型糖尿病患者及其家庭生活的实际研究。1)介绍并回顾一项使用可视电话的患者教育支持计划。(1)通过视频电话，支持儿童和青少年型糖尿病患者的自我管理。(2)我们确认血糖水平控制改善，自我管理行为改善，生活方式更积极。(3)该项目加强了家庭成员的支持，提高了当地社区和学校支持型糖尿病儿童的意愿。2)建立儿童型糖尿病的支持体系和医疗团队(1)研制日文版《父母糖尿病生活质量量表》（PDQOL），对儿童青少年型糖尿病患者的生活质量进行评估。(2)采用卡尔加里家庭评估与干预模型，探讨适用于糖尿病家庭的有效护理模式。3)研究提高自我管理技能的指导方法。

The purposes of study were to prove how to educate for children and adolescents with chronic disease by team approach. We conducted a practical study investigating the lives of pediatric patients with typel diabetes and their families.1) Introduction and review of a patient education support program using videophones.(1) Using videophones, the team supported the self-management of children and adolescents with typel diabetes.(2) We confirmed improved blood sugar level control, improved self-management behavior and more active life-styles.(3) The program strengthened the support of family members and increased the willingness of local communities and schools to support children with typel diabetes.2) Establishment of support system and medical team for children with typel diabetes(1) We developed a Japanese version of the Parents Diabetes Quality Of Life (PDQOL) rating scale to assess the QOL of patients of Children and adolescents with typel diabetes.(2)The Calgary Family Assessment and intervention Models were used families children with typel diabetes to investigate an effective care model to use with such families.3) Investigation of guidance methods that promote self-management skills.