Study of How to Care and Educate for Children with Chronic Disease by Team Approach

研究的目的是证明如何通过团队方法对患有慢性病的儿童和青少年进行教育。我们进行了一项实践性研究，调查了儿童糖尿病患者及其家人的生活。1)介绍和回顾了一项使用视频电话的患者教育支持计划。(1)使用视频电话，该团队支持儿童和青少年糖尿病患者的自我管理。(2)我们证实改善了血糖水平控制，(3)加强家庭成员的支持，提高社区和学校对儿童糖尿病的支持意愿。2)建立儿童糖尿病的支持系统和医疗团队。(1)我们开发了日文版的父母糖尿病生活质量(PDQOL)评定量表，用于评估儿童和青少年糖尿病患者的生活质量。(2)卡尔加里家庭评估和干预模式，以儿童糖尿病家庭为研究对象，探索一种有效的护理模式，用于此类家庭。3)探讨促进自我管理技能的指导方法。

The purposes of study were to prove how to educate for children and adolescents with chronic disease by team approach. We conducted a practical study investigating the lives of pediatric patients with typel diabetes and their families.1) Introduction and review of a patient education support program using videophones.(1) Using videophones, the team supported the self-management of children and adolescents with typel diabetes.(2) We confirmed improved blood sugar level control, improved self-management behavior and more active life-styles.(3) The program strengthened the support of family members and increased the willingness of local communities and schools to support children with typel diabetes.2) Establishment of support system and medical team for children with typel diabetes(1) We developed a Japanese version of the Parents Diabetes Quality Of Life (PDQOL) rating scale to assess the QOL of patients of Children and adolescents with typel diabetes.(2)The Calgary Family Assessment and intervention Models were used families children with typel diabetes to investigate an effective care model to use with such families.3) Investigation of guidance methods that promote self-management skills.