Developing a Patient Education Program for Pediatric Chronic Illness : A multidisciplinary Care Approach-Self-management Support for Children with Type I Diabetes and Family -

本研究的目的是通过多学科的护理方法来探讨慢性病儿童的患者教育模式。本研究由五个项目组成，项目总结如下：1。1型糖尿病儿童及其家庭视频电话支持系统的开发一种新型设备，通过手机传输血糖数据，用于扩展视频电话支持系统。7名农村糖尿病儿童及其家庭接受了持续2年的视频电话教育支持。儿童血糖控制和糖尿病管理技能均有提高。识别儿童自我监测血糖的观点患有1型糖尿病的儿童经历了自我监测血糖，因为它是困扰和持久的，而不是痛苦的。糖尿病的发展阶段、性别和发病年龄应作为自我监测血糖教育的重要因素。建立1型糖尿病儿童夏令营教育模式评估糖尿病夏令营对儿童的教育效果及教育者对糖尿病教育的满意度。3 .直接接触糖尿病儿童的经历、儿童信息的质量、糖尿病夏令营的充分准备与教育者对糖尿病教育的积极满意度相关。评估与糖尿病青少年一起生活的家庭观点和经验采用质性研究访谈来评估与糖尿病青少年一起生活的家庭观点和经验。探讨了家庭支持儿童应对独特经历的模式。本研究采用定性与定量相结合的方法调查住院儿童及其家长的观点。父母的经验和观点的检查显示，母亲的观点和父亲的观点之间存在差异的孩子的住院治疗。少

The purpose of this research was to investigate a patient education model for children with chronic illness through a multidisciplinary care approach. This study was consisted of five projects and the summary of these projects were indicated as follows :1. Developing a videophone support system for children with Type 1 diabetes and familyA new device, which transmits the blood glucose data via cellular phone, was used to extend a videophone support system. Seven rural children with diabetes and their families have received on-going educational videophone support for 2 years. The children's glycemic control and diabetes management skills were improved.2. Identifying children's perspectives in Self-monitoring blood glucoseChildren with type 1 diabetes experienced self-monitoring blood glucose as it was bothering and endurable rather than painful. The developmental stages, sexes, and the onset ages of diabetes should be considered as important factors when educating self-monitoring blood … More glucose to children.3. Developing a camp education model for children with type 1 diabetesThe educational effects of diabetes summer camp on children and the educators' satisfaction in their diabetes education were evaluated. The experience of the direct contact with diabetes children, the quality of information about children, and sufficient preparation for diabetes camp were correlated with the educators' positive satisfaction in diabetes education.4. Assessing family perspectives and experiences in living with diabetic adolescentsThe qualitative research interviews were conducted to assess family perspectives and experiences in living with diabetic adolescents. A model of family support for coping with unique experiences of children was explored.5. Investigating the perspectives of hospitalized children and their parentsThe study employed qualitative and quantitative methods. The examination of parents' experiences and perspectives revealed that there was a discrepancy between mothers' perspectives and fathers' perspectives in their children's hospitalization. Less