Self-management Education and Support for Patients with Pediatric Chronic Illness: Using a Team Approach

本研究的目的是为慢性疾病儿童及其家庭建立自我管理支持的护理模式。该模型考虑了儿童发育阶段、疾病类型和疾病状况的特点，以支持患有慢性疾病的儿童。在这部分研究中，信息技术被用作支持1型糖尿病儿童及其家庭成员的工具。本研究的结果如下：1。儿童1型糖尿病研究的整合与发展。(1)对支持系统的过程和信息技术支持的效果进行了考察。通过手机传输自我血糖监测数据，可以有效分析青少年糖尿病患者自我管理的结果。(2)开展自我管理效果调查，构建儿童糖尿病营管理护理标准。(3)策划并举办爱媛县当地认证糖尿病教育者研讨会，以发展糖尿病教育者的教育体系。(4)整合对1型糖尿病儿童支持的研究，并在第九届日本糖尿病教育者和护士年会上作为主席发言提出这些结果。对慢性疾病儿童及其家庭成员的支持研究进行了调查。(1)对母亲的心理转变和发展过程的结构进行了定性研究。提出了支持慢性病患儿母亲的新思路。对慢性病儿童信息技术支持系统进行重新检查，并介绍给新病例。(1)在家庭之家安装计算机系统，为慢性病家庭提供自我管理支持和社会支持信息。

The purpose of this research was to develop a nursing model of self-management support for children with chronic illness and their families. This model considers characteristics of children's developmental stages, types of illness, and conditions of disease to support children with chronic illness. In this part of research, information technology was used as a tool for supporting children with type 1 diabetes and their family members. Results of this research were shown as follows:1.Integration and development of research for children with type 1 diabetes.(1)The process of support system and effects of information technology support were examined. Transmission of data of self monitoring blood glucose using a cellular phone was effective to analyze results of self-management for adolescents with diabetes.(2)Investigation of self-management effects and a construction of the nursing standard for management of diabetes camp for children were implemented.(3)The seminars for Ehime-Prefectual Local Certified Diabetes Educator were planned and held to development of education system for diabetes educators.(4)Studies of support for children with type 1 diabetes were integrated and these results were presented as a chairperson speech in the 9th Annual Meeting of Japanese Diabetes Educators and Nurses.2.Study of support for children with chronic illness and their family members were investigated.(1)Qualitative research were done to examine mothers' psychological transformation and the structures of mothers' developmental process. New ideas of support for mothers of children with chronic illness were pointed out.3.The information technology support system for children with chronic illness was re-examined and introduced to the new cases.(1)The computer system which provides self management support to families with chronic illness and information of social support was installed in the Family House.