Self-management Education and Support for Patients with Pediatric Chronic Illness: Using a Team Approach Method

本研究的目的是利用医疗团队的方法为慢性疾病儿童开发一种自我管理支持方案，并评估该方案在临床患者案例中的应用。本文的研究结果如下：1。对糖尿病教育工作者关爱糖尿病儿童方案的制定进行了基础研究。我们为糖尿病青年患者召开了会议，并对糖尿病青年患者的生活状况进行了调查。我们还在京都举办的11^< >日本糖尿病教育与护理会议上举办了题为“1型糖尿病青年患者的学习经验”的教育会议，这些结果成为制定青年糖尿病患者支持计划的基础。对糖尿病家庭和儿童支持项目的持续教育进行了评估。研究为糖尿病营的儿童及其家庭提供了持续的支持。对糖尿病儿童的饮食自我管理进行了研究，并制定了1型和2型糖尿病儿童的饮食支持计划。3.在广岛召开的第13届日本家庭护理会议上，讨论了如何将1型糖尿病儿童及其家庭纳入国家医疗费用的支持体系。对发育障碍家庭与儿童进行了6个月的干预研究，并对早产出生的学龄儿童的母亲进行了定性研究。

The purpose of this study was to develop a self-management support program for chronically ill children using a medical team approach and to evaluate this program for applying the clinical patient cases. The results of this research were shown as follows:1. The basic study for the development of the program for the diabetes educator caring diabetic children was conducted. We opened the conference for the diabetes young patients and the investigation of the living conditions of diabetes young patients was conducted. We also held the educational session titled "the learning experiences from young patients with type 1 diabetes" in the conference of 11^<th> Japanese Diabetes Education and Nursing in Kyoto and these results became the basis of the development for the support program for young diabetes patients.2. The ongoing education for the support program for family and children with diabetes was evaluated. The researches provided on going support to the children and their family in diabetes camp. The study of the dietary self-management for the children with diabetes was examined and we developed the plan of dietary support for both children with type 1 and type 2 diabetes. A suggestion of how support system for children with type 1 diabetes and their family placed in the National Medical Fee was discussed in the 13^<th> Japanese Family Nursing conference in Hiroshima.3. The six months intervention study of family and children with developmental disorder and a qualitative study of mothers raising school aged children who were born with premature baby were conducted.